Programpunkter

Use of international standards is increasingly relevant for national e-health development. The international standardization organizations strengthen their cooperation and work targeted on common functional areas. At the same time, the EU is strengthening its work for the common use of standards in Europe. In order to achieve a faster development of solutions using the standards that affect us, the Nordic countries have strengthened their cooperation on standardization through the Nordic Council of Ministers' work on e-health.

Presentationen beskriver kortfattat vad EHDS är i form av lagförslag men också som internationell digital infrastruktur med effekt på bland annat standarder, specifikationer och utbytesformat för hälsodata även på nationell nivå. En aktuell lägesrapport ges även från pågående EU-förhandlingar om lagförslaget, samt från de EU-projekt där EHDS redan nu tar form.

The EU Commission has with the EHDS fierce expectations regarding content and timing, pursuing a seemingly somewhat independent and self-determining approach. Denmark seeks to influence, that European interests, legislation, and standards complement each other, with standards of high quality and democratic legitimacy.

Vi behöver e-hälsosystem som baseras på en kombination av Big-data genom olika plattformar vilket kan resultera för de bästa förutsättningarna för nya och effektivare plattformar i kombination med andra system. Genom att förstå hälsodata skulle vi kunna tillämpa AI och andra verktyg om regerverket tillåter. Standardisering- och certifieringsprocessen inom vården relaterade till AI-lösningar kommer att utvecklas tillsammans med Tyskland, Frankrike, Sverige, Belgien, Finland, Portugal, Slovakien, Italien och Spanien. Detta pågår genom ett EU-projekt (TEF-health, 2023-2027) där RISE Research Institutes of Sweden AB (RISE), Karolinska institutet (KI), Karolinska universitet sjukhus (KS) och SciLifeLab medverkar från Sverige. Genom att inkludera stora sjukhus och unika infrastrukturer omfattar TEF-health konsortiet upp till 20 miljoner patienter som tas emot per år, samtidigt som det erbjuder toppmoderna avbildnings- och testanläggningar.

Den demografiska utvecklingen i kombination med att det är svårt att rekrytera kompetent personal till vissa regioner i Norden förutsätter koordinerade distanslösningar för att säkra tillgången till en högkvalitativ vård och omsorg i alla regioner. I den kontexten är samverkan mellan olika välfärdsaktörer en grundbult för att det ska fungera för dem som behöver omsorgen. Men just samverkan har visat sig vara svårt att få det att fungera. 2022 publicerade Nordens Välfärdscenter och projektet Integrerad Vård och omsorg på distans (iHAC) rapporten Integrated Healthcare and Care through distance spanning solutions – for increased service accessibility. I den här sessionen presenteras vad som krävs för att regioner och kommuner ska kunna samverka. I publikationen finns en teoretisk del och fem regionala exempel på samverkan i Norden. Den teoretiska delen fokuserar på styrning och vilka komponenter som gör styrning framgångsrik. Den är skriven av forskare vid Nasjonalt senter for e-helseforskning i Norge. 

Nordiska hälsoportaler, hur ser användning och utbud ut, vilka likheter och skillnader finns?

This presentation will introduce the results of the joint Nordic PROTECT project (“Proactive health and welfare technology for Nordic users and societies”, 2021-2023) and discuss them with a future-oriented perspective. PROTECT has brought together a large group of Nordic researchers from several fields as well as stakeholders (altogether nearly 200 workshop participants from four countries). The new knowledge co-created in PROTECT contributes to understanding the specific contexts and life situations where proactive health and welfare technology (HWT) is expected to be increasingly applied in the Nordic countries. The new knowledge also encourages and enables further research on the topic. Sharing research-based knowledge about the similarities and differences in proactive HWT services, implementation, and policies – including challenges in proceeding from piloting to implementation – across the Nordic societies enables better overall understanding of the experiences and expectations of diverse users in the individual countries and in the region. This, in turn, will help improve policy interventions and innovations to enhance proactive and resilience-supporting HWT use and the quality of life and work of Nordic citizens and caregivers.

The presentation will introduce a Nordic research network in health and welfare technology (HWT). The research network has around 80 members from all the Nordic countries and aims to consolidate knowledge, research, higher education, and experiences in health and welfare technology with a user perspective. The purpose of the presentation is to inform about ongoing activities and to link more researchers to the network. The network also wants to be a contributor with knowledge about HWT for the authorities in the Nordic countries.

Introduction to the session "Northern Excellence in Online Records" and short presentation of the NORDeHEALTH project.

In this session, we describe the methodology for the NORDeHEALTH 2022 Patient Survey and present an overview of the data collected in Sweden, Norway, Finland, and Estonia, respectively. 

Patient-accessible electronic health records (PAEHR) have the potential to empower patients, but their impact may vary between psychiatric and somatic patients due to unique sensitivities in medical notes. In Norway, all hospitals have implemented PAEHR since 2015. Despite ongoing debate, further research is needed on user experiences and perceptions in general health care, particularly psychiatry. In this lecture, we will explore the following topics from Norway’s perspective: 1) how the use of PAEHR differs between psychiatric and somatic patients, 2) the serious mistakes patients have perceived and their impact on each group, and 3) the implications for practice in the era of transparent EHR and new ways of thinking.

NORDeHEALTH: Usability of national patient portals in Finland, Estonia, Norway, and SwedenNordic countries have been forerunners while having patient portals already for a decade. However, it is still important to improve usability for getting more benefits and also to help other countries develop their eHealth services. There hasn’t been a similar international comparison as we have now with our international patient survey. We’ll share international and local benefits and challenges regarding the usability of national patient portals in Finland, Estonia, Norway, and Sweden.

NORDeHEALTH: Patients' Input to Electronic Health Record – Opportunities and Challenges in EstoniaYou will get an overview of how the system of patients’ online health record works in Estonia today. We will take you through the opportunities, but also challenges for the future and give an insight of how we plan to overcome those. As more and more emphasize are put on person-centeredness in healthcare, but also in order to fully achieve the potential benefits of digitalization, it is necessary to further explore how could electronic health records shift from solely being a documentation tool for health professionals to rather a tool for secure collaboration and communication with patients and family caregivers. We will introduce you our co-designing journey on patient-generated health data on blood pressure and blood glycose levels.

Closing session on Northern Excellence in Online Records!We will tell you what the next steps in the NORDeHEALTH project are, related to studies, publications and public presentations.https://nordehealth.eu/ 

Introduction to Nordic track - By clinicians, for clinicians

The need for new skills for doctors innovating for the future and why an entrepreneurial mindset could be part of the solution. 

Every year, several million triages are performed in Sweden to evaluate and prioritize patients' medical needs. In the past, these assessments were conducted solely over the phone or at primary care centers, without any means of systematic evaluation. However, a groundbreaking shift is underway as Sweden digitizes its triage process, revolutionizing one of the most crucial processes in healthcare.Now, for the first time ever, patients' questions, responses, and advice can be analyzed systematically. The implications for patient safety and equity are profound, and it is essential to consider how this transformation affects vulnerable groups, such as the elderly and frail, who may not have access to digital tools. Join Jonathan Ilicki on a journey beyond the ordinary and gain unique insights into the pivotal role of triage in coordinating healthcare. Discover how digitization is transforming healthcare delivery in Sweden and shaping the future of medical care.

Presentation of the six years of experience in using mixed reality applications in planning liver and heart surgery at Oslo University Hospital. Description of research, development and implementation of clinical applications from image data to surgical strategies in 3D. It was initiated by clinicians based on clinical challenges to be fully compatible with clinical reality. Efficient workflow, fully integrated with hospital infrastructures cloud/browser-based with no need for specialized workstations.Ample experience is derived from surgical planning sessions for colorectal liver cancers and structural heart diseases. Not only limited to the most complex surgical cases. In pediatric heart surgery, holographic visualization brings enhanced 3D anatomical understanding of complex heart defects. It provides insight that reduces the risk of damaging critical structures in the surgical area. Holographic information impacts surgical plans in about half of the tested cases.In liver cancer surgery, holographic visualization brings anatomical overview and improves spatial understanding of internal anatomical structures in relation to the tumour. This is important when planning intricate surgical paths within the liver. Additionally, it better utilizes already available preoperative data to be used in surgical planning as an adjunct to the standard of care.Industrial collaboration has been vital in the establishment of minimum viable products as well as in establishing a start-up. This paved a path towards regulatory approvals and the distribution of applications for clinical use outside our hospital. We will present published and unpublished results from our department - where we have failed and succeeded and what we have learned in the process.Finally, we will provide a glimpse of the future trend in the current project and what is coming next.