Programpunkter

EHDS - Status and negotiation process

The Health Data Guide is intended to provide an overview of managing health data effectively so that the goals of improving the health of individuals can be more easily realized. Part One should provide a brief overview of the health data area and insights into a series of typical hurdles to overcome and ditches to avoid. It should provide the newcomer to the area with sufficient orientation to facilitate the discussion with various experts and partners. The more detailed Part Two is under development.

In order to unite Europe under a digital single market and increase mobility within Europe, the EU Commission has initiated the X-eHealth project with the aim to develop functional and technical specifications for new E-health services to exchange medical information in the areas of laboratory results, medical images, discharge reports and patient summary for rare diseases.Manne and Espen talks in detail about the X-eHealth project, its content and results and how the project's mission is connected to the European Health Data Space, EHDS.

The TEHDAS Joint Action carried out country visits to map the state-of-play of national health data management systems and their preparedness to join a future EHDS for secondary use. The presentation will present the findings of 12 country visits carried out between December 2021 and December 2022, focusing on different themes (e.g., data sources, access procedures, data governance), with a focus on the overall preparedness and the needs and expectations of countries to be able to join the EHDS

This is a session presenting basic recommendations intended to facilitate the planning (and implementation) of national legislation on secondary use of health data. These recommendations are based on a summary on a multinational level of the experiences and conclusions of pioneering European countries that already have such national legislation, in combination with the needs of other European countries in this respect.

EHDS (European Health Data Space) proposes a common European legislation which among other things ensures access to health data for secondary use.In this presentation, we look at the informatics associated with secondary use of health data, established standards and techniques for making data available for secondary use (including OMOP), international real world examples and how healthcare organizations can benefit internally from tools for secondary use.