Programpunkter

Patient-accessible electronic health records (PAEHR) have the potential to empower patients, but their impact may vary between psychiatric and somatic patients due to unique sensitivities in medical notes. In Norway, all hospitals have implemented PAEHR since 2015. Despite ongoing debate, further research is needed on user experiences and perceptions in general health care, particularly psychiatry. In this lecture, we will explore the following topics from Norway’s perspective: 1) how the use of PAEHR differs between psychiatric and somatic patients, 2) the serious mistakes patients have perceived and their impact on each group, and 3) the implications for practice in the era of transparent EHR and new ways of thinking.

Presentation of the Regional digital health action plan for the WHO European Region 2023–2030.

Dana Lewis founded the open-source artificial pancreas movement (known as “OpenAPS”), working to make safe and effective automated insulin delivery (AID) technology available (sooner) for people with diabetes around the world for the past 8 years. She authored the book, "Automated Insulin Delivery: How artificial pancreas “closed loop” systems can aid you in living with diabetes", to help more people understand automated insulin delivery systems, in addition to a series of children's books on various health topics. She is now a researcher and her peer-reviewed publications have been cited more than 1,300 times. She has collected numerous types of individual data and conducted research with it, while also working to support communities of patients and medical and academic researchers to harness the power of real-world shared data for improving healthcare.

The amount of information on Traditional Medicine in Systematized Nomenclature of Medicine – Clinical Terms (SCT), the world’s most comprehensive health terminology, is unclear. The purpose of this study is to address that unclarity and investigate to which extent the concepts of ICD-11-CH26 can be found in SCT.

Finnish Social and Health Data Permit Authority Findata is the first one-stop shop in the world that issues permits for secondary use of social welfare and health care data. This presentation highlights the Finnish experiences of secondary use from past three years, as the whole EU is now planning to take similar steps towards the European Health Data Space.

Separate registration required: https://www.mie2023.org/tutorials, The open-source Python framework AUCMEDI offers a solution to the describedchallenges. The software package not only offers a library as a 'high-level' API for thestandardized construction of modern medical image classification pipelines, but alsoreproducible installation and direct application via Dockerization and automatichyperparameter detection. With AUCMEDI, researchers are able to set up a completeas well as easy-to-integrate medical image classification pipeline with just a few linesof code. AUCMEDI is available as a Python package via PyPI ('pip install aucmedi')and as a repository via GitHub with detailed documentation, examples, and bindings tomodern DevOps (CI/CD) techniques: https://frankkramer-lab.github.io/aucmedi/.

Patient accessible electronic health records (PAEHRs) have been proposed as a means to improve patient safety and documentation quality, as patients become an additional source to detect mistakes in the records. In pediatric care, healthcare professionals (HCP) have noted a benefit of parent proxy users correcting errors in their child’s records. However, the potential of adolescents has so far been overlooked, despite reports of reading records to ensure accuracy. The present study examines errors and omissions identified by adolescents, and whether patients reported following up with HCPs. Survey data was collected during three weeks in January and February 2022 via the Swedish national PAEHR. Of 218 adolescent respondents, 60 reported having found an error (27.5%) and 44 (20.2%) had found missing information. Most adolescents did not take any action upon identifying an error or an omission (64.0%). Omissions were more often perceived as serious than errors. These findings call for development of policy and PAEHR design that facilitates reports of errors and omissions for adolescents, which could both improve trust and support the individual’s transition into an involved and engaged adult patient.

“The Nordic Welfare Model is not sustainable!”, they said, ”Too much focus on healthcare and too little on preventative care will break the system going forward. We need to get the citizens more involved, not only in the care process but also in preventative care. The question is just – how?”

Despite years of work from both informaticians and IT-architects interoperability within healthcare is still low. This explorative case study performed on a well-staffed public health care provider shows that the involved roles were unclear, processes did not include each other, and that tooling was incompatible.However, interest in collaboration was high and technical advances and inhouse development were seen as incentives for increased collaboration.

Women have been historically excluded from healthcare research and women’s health issues still receive inadequate attention, yet women live more years in poor health and with disability.Digital transformation and a rapidly growing global FemTech market provide new opportunities to transform the lives of millions of women globally and contribute to a substantial social impact and economic gains. However, research on FemTech that provide robust evidence on its value is lacking.In this seminar, based on our ongoing research, we will discuss opportunities and challenges of FemTech and why a rigorous research agenda with targeted research funding is needed. We will also address research methods that include multi-stakeholder partnerships, methods of intersectionality research to address health inequities, and co-creation models to engage women in the co-design of technologies to ensure person-centered outcomes.