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Workshop on Patient Generated Health Data – Digital Tools and Applications Passed

Thursday May 25, 2023 12:45 - 14:00 R23

Lecturer: Virpi Jylhä

Track: MIE: Special Topic: Caring is Sharing - exploiting value in data for health and innovation

The core of the patient centeredness is that care provided is respectful of and responsive to patients` preferences, and values, which should guide the clinical decisions. Patient generated health data (PGHD) integrates patients` values and preferences into decision-making. Digitalization of health care services and PGHD provide an opportunity to integrate patient preferences and values with EPRs to support decision-making. The workshop is based on the studies conducted in the Reliable Knowledge for health Care: Process and Practice of Shared Decision Making – research project (www.proshade.fi). We study PGHD and information in shared decision-making.

In this workshop, we focus on digital tools and applications for PGHD and aim to build a network of researchers. Participants will be able to:

•Gather collective information on experiences and research relating to digitally stored PGHD

•Generate new ideas for the research and development of digital tools and applications for PGHD

•Build a network of researchers who are interested in digital tools and applications for PGHD

Discussion topics:

1.Identification of the researchers, research projects and digital tools and applications for PGHD to build a network of researchers in the field.

2.Experiences and perceptions of the research and practice regarding the digital tools and applications for PGHD

3.Recommendations for future research topics in the field of PGHD.

You are warmly welcome!

Language

English

Seminar type

On site only

Level of knowledge

Advanced

Conference

MIE

Authors

Virpi Jylhä, Kaija Saranto, Tuuli Turja, Hanna Kuusisto

Lecturers

Profile image for Virpi Jylhä

Virpi Jylhä Lecturer

Senior lecturer
University of Eastern Finland

I am a Senior Lecturer in Health and Human Services Informatics interested in patient-generated data, information practices in digital services, data protection, client and patient safety, and evidence-based health care. I am also the Deputy Director of the Finnish Centre for Evidence-Based Health Care: A JBI Centre of Excellence.