Sessions

Som en del i arbetet med att öka takten på digitalisering och skapa förutsättningar att ställa om till en god och nära vård i Västra Götalandsregionen (VGR) bygger VGR ett privat 5G-nät. Förändringen innebär en av de största möjliggörarna för VGR:s hälso- och sjukvårdsverksamheter att kunna utveckla nya arbetssätt med stöd av digital teknik.

The European Genomic Data Infrastructure (GDI) is dedicated to facilitate secure federated cross-border access to high-quality genomic and phenotypic data for research, personalized medicine and policy making. The presentation introduces the project and highlights the progress achieved by the GDI consortium, consisting of 24 countries, with a focus on the technical advancements.

Our vision is to shape the future of European healthcare through the transformative power of AI. We envision a healthcare landscape where innovative AI solutions seamlessly integrate with existing systems, enabling improved patient outcomes, enhanced healthcare delivery, and equitable access to quality care. By fostering collaboration, advancing research, and facilitating market access for trustworthy AI technologies, we strive to revolutionize healthcare and empower individuals and communities to lead healthier lives.Our mission is to accelerate the development and adoption of AI solutions in healthcare by providing a cutting-edge testing and experimentation facility. We are dedicated to creating an environment that enables AI developers, researchers, and industry stakeholders to collaborate, innovate, and overcome the challenges of integrating AI into the healthcare ecosystem. Through rigorous evaluation, adherence to regulatory requirements, and a focus on ethical and societal aspects, we aim to ensure the safe, effective, and responsible use of AI in healthcare settings.

During the spring of 2024 the EU Commission will most probably decide on the final version of the European Health Data Space, and also the timeline for implementation. The Centre for Health Data (CHD), which is part of Region Stockholm coordinates requests for health data for research and innovation purposes. This presentation will describe barriers and possibilities with providing health data during the current system, and how the EHDS may impact regional work with health data provision. 

Umeå University is, together with 79 European partners, part of the EUCAIM project, which with AI tools and intelligent algorithms will achieve more accurate and faster diagnosis and treatment of cancer by creating a European infrastructure for quality-assured, annotated image data and associated clinical data. In Sweden, researchers from Umeå university, Region Västerbotten, Uppsala (SciLifeLab) and Linköping University as well as Karolinska Institutet participate. The idea with EUCAIM is to create both a central and a distributed infrastructure, to support develop AI development by a robust, trustworthy platform for researchers, clinicians, and innovators to access diverse cancer images, enabling the benchmarking, testing, and piloting of AI-driven technologies. In this way the development of cancer diagnosis and treatment is supported and precision medicine is strengthened by development of precision imaging. Images and other data may remain in different hospitals, but everyone has access to the description of all data, and this in a GDPR-safe way. To create this, we need, among other things, to build secure infrastructures for data sharing and solve several legal challenges.

Description of the experience of setting up the French Health DataHubPresentation of progress, challenges and remaining work for the HealthData@EU pilot project

Pharmaceutical industry continues to evolve, the utilization of comprehensive health data has become pivotal in shaping the future of drug discovery. This talk delves into the multifaceted challenges associated with harnessing the potential of extensive human cohort datasets. Join us for an insightful exploration that aims to inspire thoughtful discourse, foster collaboration, and propel the industry towards a future where health data becomes an invaluable asset in the pursuit of groundbreaking medical discoveries.

The Middle East's healthcare sector is undergoing a massive digital transformation, fueled by the implementation of  plethora of mega health exchange projects and the rapid changes digital health regulatory frameworks . However, a critical challenge lies in the lack of skilled professionals in health data governance (HDG), hindering the region's ability to fully leverage its health data potential. The speaker will highlight the role of ZIMAM in addressing specific challenges and opportunities within the GCC healthcare sector to make the call for upskilling and cross-skilling talents to operationalize recently issued GDPR-like regulations and policies. The role these talents would be vital  to support adopting and adapting best practices in health data governance and data sharing as well as utilizing technology tools and services to support ethical processing and sharing of personal health information for both primary and secondary use.

This session will review the digital health transformation journey for Canada's largest province and its transition towards an open source-based data fabric model.

In this track, we have been presented work that is being done in different countries, often as a consequence of the EHDS proposal (or regulation, depending on how far along in the negotiations we are in May). Work is also being done in this area in other countries as well. As a last session of the track we are going to include representatives from the private sector. What are their opinions on the work presented, how will it impact their companies and what kinds of benefits can they foresee?