When the Vitalis Conference takes place in May 2024 the new EU Regulation for the European Health Data Space (EHDS) may already have been finally adopted and entered into force. EHDS aims to empower the citizens when it comes to having control over their own health data. At the same time contribute to the possibilities and conditions for health care as well as research and innovation to get access to relevant health data in an efficient and secure manner. Expected outcomes include for instance new innovative medical treatments and diagnostics, AI development and Precision Medicine, thus optimizing value from health data, for the benefit of individuals as well as society as a whole. However, there is no doubt that the implementation of EHDS also comes with substantial challenges of different kinds.
In this conference program track of two half days Swedish and international experts will give an update on the status of EHDS, with a focus on the possibilities and challenges, with concluding panel discussions. Topics will include interoperability layers of legal, technical, semantic and organizational character, but also concrete applications of data-sharing within a number of biomedical disciplines.
In addition to EHDS, other international examples of health data spaces will also be presented and discussed, for inspiration and exchange of best practice.
Moderator Primary and Secondary use Wednesday 13:00-17:00 : Maria Hassel
Moderator Research Infrastructure, Thursday 8:30 - 12:15 : Rikard Lövström
The European Health Data Space; a health specific ecosystem