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Where Medical Informatics Can Help to Prevent Rare Diseases from Vanishing in Hospital Information Systems Passed

Tuesday May 23, 2023 15:45 - 17:15 J2

Chairmen: Dagmar Krefting, Holm Graessner
Lecturers: Ana Rath, Peter N. Robinson, Tamara Martin

Track: MIE: Special Topic: Caring is Sharing - exploiting value in data for health and innovation

Language

English

Seminar type

On site only

Level of knowledge

Advanced

Conference

MIE

Authors

Holm Graessner, Tamara Martin, Kais Tahar, Josef Schepers, Ana RATH, Peter N. Robinson, Dagmar Krefting

Lecturers

Profile image for Dagmar Krefting

Dagmar Krefting Chairman

Professor for Medical Informatics
University Medical Center Göttingen

Fields of interest:
- collaborative research environments
- FAIR, reproducible and open science
- biosignal processing
- explainable and interpretable AI

Holm Graessner Chairman

PhD, MBA, FEAN
University Hospital Tübingen

Ana Rath Lecturer

INSERM-Orphanet

Peter N. Robinson Lecturer

Jackson Laboratory for Genomic Medicine

Tamara Martin Lecturer

Project manager
University Hospital Tübingen

Academic employee at the Scientific Project Management Department at University Hospital Tübingen, with MSc. Cellular & Molecular Neuroscience (Tübingen, Germany).

Member in work package "Monitoring of data quality" in the German project "Collaboration on Rare Diseases", Use Case of the German Medical Informatics Initiative.

Operational Helpdesk for consultation platform CPMS in the framework of the European Reference network for Rare Neurological Diseases.