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Nordic collaboration in secondary use of health data: introducing the VALO project
Persephone Doupi
Onsdag 15 maj 2024 16:00 - 16:30 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Orientering, Fördjupning, Chef/Beslutsfattare, Politiker, Verksamhetsutveckling, Tekniker/IT/Utvecklare, Forskare (även studerande), Vårdpersonal, Innovativ/forskning, Uppföljning/Nulägesbeskrivning, Information/myndighet
A broad spectrum of health-focused communities are dependent on, as well as expecting more streamlined and effective solutions for secondary use of health data: rare disease and cancer research, health services research and public health, preparedness and response to health threats, to name a few. With digitalization being both a priority and a success story in the Nordic region, the VALO project aims to deliver proof of how value from Nordic (digital) health data can be achieved and enhanced.
Revolutionizing Healthcare: Simplifying System Integration and Protecting Patient Data
Joachim Wallberg
Onsdag 15 maj 2024 16:00 - 16:30 F2
Framväxande teknologier, English, Enbart på plats, Presentation, Inspiration, Fördjupning, Chef/Beslutsfattare, Verksamhetsutveckling, Forskare (även studerande), Omsorgspersonal, Vårdpersonal, Välfärdsutveckling, Innovativ/forskning, Patientsäkerhet, Etik
This presentation explores the complexities and costs associated with implementing new systems in healthcare, focusing on the challenges of migrating patient data and maintaining interoperability between systems. It proposes a novel approach using lightweight FHIR messages and OpenEHR standards to streamline data integration and preserve the integrity of electronic patient records. By adopting these methods, healthcare providers can enhance patient care, reduce clinical risks, and facilitate research, ultimately leading to more efficient and patient-centric healthcare solutions.
Joint actions towards the European Health Data Space - TEHDAS 1&2
Markus Kalliola
Onsdag 15 maj 2024 16:30 - 17:00 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Chef/Beslutsfattare, Verksamhetsutveckling, Tekniker/IT/Utvecklare, Forskare (även studerande), Vårdpersonal
Summary of what joint action TEHDAS accomplished 2021-2023 and how Member States are preparing for the harmonised implementation of EHDS with TEHDAS2
Research infrastructures
Rikard Lövström
Torsdag 16 maj 2024 08:30 - 08:35 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd
Providing access to genomic data to improve research, policy making and healthcare across Europe
Anna Hagwall
Torsdag 16 maj 2024 08:35 - 08:50 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Orientering, Introduktion, Chef/Beslutsfattare, Politiker, Verksamhetsutveckling, Vårdpersonal, Exempel från verkligheten (goda/dåliga), Nytta/effekt, Innovativ/forskning
The European Genomic Data Infrastructure (GDI) is dedicated to facilitate secure federated cross-border access to high-quality genomic and phenotypic data for research, personalized medicine and policy making. The presentation introduces the project and highlights the progress achieved by the GDI consortium, consisting of 24 countries, with a focus on the technical advancements.
TEF-Health: Testing and Experimentation Facility for Health AI and Robotics
Johanna Furuhjelm
Torsdag 16 maj 2024 08:50 - 09:05 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Orientering, Fördjupning, Chef/Beslutsfattare, Verksamhetsutveckling, Omsorgspersonal, Vårdpersonal, Exempel från verkligheten (goda/dåliga), Test/validering, Juridik, Etik
Our vision is to shape the future of European healthcare through the transformative power of AI. We envision a healthcare landscape where innovative AI solutions seamlessly integrate with existing systems, enabling improved patient outcomes, enhanced healthcare delivery, and equitable access to quality care. By fostering collaboration, advancing research, and facilitating market access for trustworthy AI technologies, we strive to revolutionize healthcare and empower individuals and communities to lead healthier lives.Our mission is to accelerate the development and adoption of AI solutions in healthcare by providing a cutting-edge testing and experimentation facility. We are dedicated to creating an environment that enables AI developers, researchers, and industry stakeholders to collaborate, innovate, and overcome the challenges of integrating AI into the healthcare ecosystem. Through rigorous evaluation, adherence to regulatory requirements, and a focus on ethical and societal aspects, we aim to ensure the safe, effective, and responsible use of AI in healthcare settings.
Opening health data to patient-facing apps
Mikael Rinnetmäki
Torsdag 16 maj 2024 09:00 - 09:30 A2
Interoperabilitet, English, Förinspelat + På plats, Presentation, Verktyg för implementering, Fördjupning, Politiker, Tekniker/IT/Utvecklare, Forskare (även studerande), Personcentrering, Appar, Information/myndighet
HL7 Europe has created guidelines for opening access to health data to patient-facing apps. These guidelines propose practical and prioritized steps towards a rich ecosystem of apps that empower patients in becoming more active participants in their own health care, while guaranteeing safety.
Region Stockholm - Center of health data
Helene Spjuth
Torsdag 16 maj 2024 09:05 - 09:20 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Orientering, Introduktion, Chef/Beslutsfattare, Verksamhetsutveckling, Forskare (även studerande), Exempel från verkligheten (goda/dåliga), Uppföljning/Nulägesbeskrivning
During the spring of 2024 the EU Commission will most probably decide on the final version of the European Health Data Space, and also the timeline for implementation. The Centre for Health Data (CHD), which is part of Region Stockholm coordinates requests for health data for research and innovation purposes. This presentation will describe barriers and possibilities with providing health data during the current system, and how the EHDS may impact regional work with health data provision.
Navigating the Future of Healthcare: Overcoming Key Challenges in AI Medical Device Innovation
Alva Rampe, Malin Pfister
Torsdag 16 maj 2024 09:15 - 09:45 Innovation Area
Innovation Area, English, Enbart på plats, Utökad, Orientering, Introduktion, Chef/Beslutsfattare, Verksamhetsutveckling, Tekniker/IT/Utvecklare, Forskare (även studerande), Omsorgspersonal, Vårdpersonal, Styrning/Förvaltning, Innovativ/forskning, Appar, Användbarhet
Artificial Intelligence has become the way of exceeding beyond the human limitations and healthcare faces a new era of technology. The potential for AI-based medical devices is immense, but a challenging field to navigate. This presentation, based on a recent empirical study, gives insight on the common challenges faced by companies developing AI medical devices, and provide strategies on how to effectively overcome these challenges.
MyData and ourdata
Fredrik Lindén, Lal Chandran, Lotta Lundin
Torsdag 16 maj 2024 09:30 - 10:00 A2
Interoperabilitet, English, Förinspelat + På plats, Presentation, Inspiration, Fördjupning, Chef/Beslutsfattare, Tekniker/IT/Utvecklare, Omsorgspersonal, Vårdpersonal, Patientorganisationer/Brukarorganisationer, Exempel från verkligheten (goda/dåliga), Personcentrering, Styrning/Förvaltning, Innovativ/forskning, Informationssäkerhet, Etik
Having finished the Vinnova project on diabetes and moved on to the system demonstrators and CRANE PCP project, we give an update on the MyData operators and Web3 technologies in Healthcare, the formation of nxd.foundation and its governance.
The French Health Data Hub & the HealthData@EU pilot project
Marianne Benderra
Torsdag 16 maj 2024 09:35 - 10:00 F1
The European Health Data Space; a health specific ecosystem, English, Presentation, Orientering, Fördjupning, Chef/Beslutsfattare, Politiker, Tekniker/IT/Utvecklare, Forskare (även studerande), Studerande, Patientorganisationer/Brukarorganisationer, Exempel från verkligheten (goda/dåliga), Innovativ/forskning, Test/validering, Informationssäkerhet, Information/myndighet
Description of the experience of setting up the French Health DataHubPresentation of progress, challenges and remaining work for the HealthData@EU pilot project
Navigating Challenges in Integrating Health data (EMR/Human cohorts) for Innovative Pharma Drug Discovery Research
Vinay Pawar
Torsdag 16 maj 2024 10:00 - 10:25 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Chef/Beslutsfattare, Verksamhetsutveckling, Tekniker/IT/Utvecklare, Forskare (även studerande), Vårdpersonal, Exempel från verkligheten (goda/dåliga)
Pharmaceutical industry continues to evolve, the utilization of comprehensive health data has become pivotal in shaping the future of drug discovery. This talk delves into the multifaceted challenges associated with harnessing the potential of extensive human cohort datasets. Join us for an insightful exploration that aims to inspire thoughtful discourse, foster collaboration, and propel the industry towards a future where health data becomes an invaluable asset in the pursuit of groundbreaking medical discoveries.
Swedish Companies Going Global - An outlook on the world
Britta Stenson, Louise Bengtsson
Torsdag 16 maj 2024 10:00 - 12:00 Innovation Area
Innovation Area, English, Enbart på plats, Presentation, Inspiration, Introduktion, Chef/Beslutsfattare, Forskare (även studerande), Studerande, Patientorganisationer/Brukarorganisationer, Exempel från verkligheten (goda/dåliga), Styrning/Förvaltning, Innovativ/forskning, Appar
There is a big need for Swedish solutions to healthcare challenges around the world. What is going on within digital health in Germany, France, Spain, United Kingdom and more? Tune in to this session and learn more!
Keynote: MD. David Feinberg
David Feinberg, Boubou Hallberg
Torsdag 16 maj 2024 10:30 - 11:00 F-Expo
Moderna vårdinformationssystem som möjliggörare för sjukvårdens omställning, Keynotes, English, Livesänd
Modern health information systems in healthcare are a prerequisite for the transformation of healthcare. They enable patient participation, decision support and real-time data sharing. Many Nordic countries, like Sweden, have recently introduced new EHR systems or are planning to do so. The aim of this session is to share lessons and insights on both implementation and use of health data. What can we learn from each other and what should be coordinated now that half of Sweden is changing EHR systems? What needs to be done nationally? What will be the next step?
Secondary uses of health datain the EHDS: An overview
Ander Elustondo Jauregui
Torsdag 16 maj 2024 10:30 - 10:55 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd
Nordic countries as forerunners for openEHR
Hanna Pohjonen
Torsdag 16 maj 2024 10:30 - 11:00 A2
Interoperabilitet, English, Förinspelat + På plats, Presentation, Inspiration, Introduktion, Chef/Beslutsfattare, Politiker, Verksamhetsutveckling, Nytta/effekt, Utbildning (utbildningsbevis), Styrning/Förvaltning, Innovativ/forskning, Uppföljning/Nulägesbeskrivning
Norway, Sweden and Finland may be considered as forerunners in adopting openEHR and moving towards open ecosystems. Cross-organizational data sharing has historically been the objective in all Nordic countries. The needs to share data resulted in national document-based data sharing infrastructures in all Nordic countries. That was, however, somewhat limited and the need for complementary structured sharing has started to emerge. In the Nordics the dominant EHR market leaders chose openEHR as their own data model and started to modernize their solutions as their own internal decision. The Nordic experience shows that in order to build a true ecosystem, it is important to increase awareness among all stakeholders. This lecture discusses the Nordic drivers, benefits and challenges of openEHR as well as the ways how you can make the openEHR project successful.
Bridging the Talent Gap in Health Data Governance
Osama Elhassan
Torsdag 16 maj 2024 10:55 - 11:20 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Inspiration, Avancerad, Chef/Beslutsfattare, Verksamhetsutveckling, Exempel från verkligheten (goda/dåliga), Innovativ/forskning, Informationssäkerhet, Information/myndighet, Etik
The Middle East's healthcare sector is undergoing a massive digital transformation, fueled by the implementation of plethora of mega health exchange projects and the rapid changes digital health regulatory frameworks . However, a critical challenge lies in the lack of skilled professionals in health data governance (HDG), hindering the region's ability to fully leverage its health data potential. The speaker will highlight the role of ZIMAM in addressing specific challenges and opportunities within the GCC healthcare sector to make the call for upskilling and cross-skilling talents to operationalize recently issued GDPR-like regulations and policies. The role these talents would be vital to support adopting and adapting best practices in health data governance and data sharing as well as utilizing technology tools and services to support ethical processing and sharing of personal health information for both primary and secondary use.
Nordic FHIR Base Profiles
Thomas Tveit Rosenlund, Daniel Karlsson, Mikael Rinnetmäki, Michael Johansen
Torsdag 16 maj 2024 11:00 - 11:30 A2
Interoperabilitet, English, Förinspelat + På plats, Presentation, Orientering, Introduktion, Chef/Beslutsfattare, Politiker, Tekniker/IT/Utvecklare, Uppföljning/Nulägesbeskrivning, Appar, Information/myndighet
This session presents ongoing work to harmonize the FHIR base profiles of different Nordic countries to create a common Nordic FHIR Base profile specification.
Canadian example on healthcare transformation via standards
James Agnew
Torsdag 16 maj 2024 11:20 - 11:45 F1
The European Health Data Space; a health specific ecosystem, English, Livesänd, Presentation, Verktyg för implementering, Introduktion, Chef/Beslutsfattare, Upphandlare/inköp/ekonomi/HR, Tekniker/IT/Utvecklare, Studerande, Patientorganisationer/Brukarorganisationer, Exempel från verkligheten (goda/dåliga), Nytta/effekt, Utbildning (utbildningsbevis), Personcentrering, Styrning/Förvaltning, Kommun, Innovativ/forskning, Patientsäkerhet, Informationssäkerhet, Information/myndighet, Användbarhet
This session will review the digital health transformation journey for Canada's largest province and its transition towards an open source-based data fabric model.
No-code development in openEHR
Andraž Koželj
Torsdag 16 maj 2024 11:30 - 12:15 A2
Interoperabilitet, English, Förinspelat + På plats, Utökad, Verktyg för implementering, Fördjupning, Tekniker/IT/Utvecklare, Forskare (även studerande), Exempel från verkligheten (goda/dåliga), Nytta/effekt, Innovativ/forskning, Användbarhet
Join Andraž Koželj, Senior Technical Lead at Better and a certified openEHR educator, at the deep dive into the world of openEHR, where he will show the core technical elements of openEHR and the openEHR architecture, where data is separated from the applications. He will explain how data is stored in the openEHR repository, and what the clinical data documents look like.