Patients' experience of facing Graves' disease- how healthcare can address their needs Passed
Tuesday May 14, 2024 15:44 - 16:30 Poster Arena
Presenter: Agneta Lindo
Track: Posters, Living with health, illness, suffering
Poster can be found in location 42.
Background: Graves' disease (GD), the most common form of hyperthyroidism in Sweden affecting 2100 patients annually, primarily impacts working-age women who present with symptoms such as anxiety, nervousness, lack of patience and concentration, and memory loss. Research exploring the patient's perspective on the care they receive is scarce. The aim of this study was to describe how patients with GD perceive the support provided by healthcare professionals in the first three months of treatment. This study seeks to offer valuable insights on how to optimise care for patients with GD and improve outcomes. Method: A qualitative study including 15 patients (12 women and 3 men, with a mean age of 47,3) who were interviewed within three months of receiving their diagnosis. The interviews were analysed using qualitative content analysis. Findings: The results highlighted the challenges faced by patients with GD in recognizing and understanding their symptoms, managing their daily lives, and seeking appropriate support. Four categories were formulated: facing illness; interaction with healthcare; consequences in daily life; and moving forward/reorientation. The participants emphasised their concerns over not being able to recognise themselves and the uncertainty about whether the condition was transient or not. They also stressed the importance of receiving a more customised support and follow-up according to individual needs and resources. Conclusion: Patients with GD request tailored support and healthcare professionals need to be aware of the challenges met by patients with GD. A person-centred care (PCC) approach, which emphasizes collaboration and support, may be a suitable approach. Consequently, we are in the process of planning a randomised controlled trial to evaluate if a PCC intervention can improve health outcomes and contribute to the patients' recovery process.
Seminar type
Poster
Conference
GCPCC
Authors
Agneta Lindo, Angelica Rivera Johnsson , Andreas Fors, Helena Filipsson Nyström
Lecturers
Agneta Lindo Presenter
Phd student, Nurse
Institute of Medicine , University of Gothenburg
My name is Agneta, and I am a nurse practitioner specialising in thyroid research. I am driven by a passion for developing collaborative healthcare models with patients, with the aim of ensuring optimal care.