Huvudbild för Vitalis 2024

Person-centred palliative home care from patient- and carer-perspectives – a scoping review Har passerat

Tisdag 14 maj 2024 15:44 - 16:30 Poster Arena

Rapportör: Lotta Pham

Spår: Life-limiting conditions, Posters

Poster can be found in location 36.

Patients approaching end of life often express a desire to spend their last months – and even die – at home, if given appropriate support. Thus they may benefit from palliative care at home. The aim of this study was to summarize and synthesize the literature regarding patients’ and carers’ perspectives of palliative care at home through the analytic lens of the 6S‐model for person‐centred palliative care. A scoping review was performed with PubMed, CINAHL, and Scopus (2008- June 2019) including twenty-four studies illustrating the perspectives of the patient (1), patients and carers (4) and solely carers (19). A qualitative deductive analysis was applied using the 6S model: Self-image, Self-determination, Symptom relief, Social relationships, Synthesis and Strategies.   Palliative home care enabled patients and carers to maintain daily life, which strengthened their self-image. However, if carers’ expectations of the healthcare system were unmet, it could be perceived as a threat. Adequate symptom relief was sometimes described as a prerequisite for palliative home care, as severe symptoms caused uncertainty and distress. Fulfilling the patient’s wish to be cared for at home contributed to the experience of maintaining control: self- determination. Continuity and familiarity (including having family and friends around) was preferred when establishing relations with professionals. Social relationships were thus crucial to the patients and contributed to their wellbeing. Synthesis and strategies involved finding meaning in their situation and being able to share life stories. For carers, support from healthcare professionals was crucial, as they provided information about the patient’s condition and the unfolding of the dying process. Our results demonstrate that the dimensions in the 6S model are relevant for both patients and family caregivers when palliative care occurs at home. Database searches from more recent years are ongoing, which might modify the results.   

Språk

English

Seminarietyp

Poster

Konferens

GCPCC

Authors

Lotta Pham, Jeanette Källstrand, Malin Bengtsson

Föreläsare

Lotta Pham Rapportör

Sahlgrenska University hospital