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Carers of people with mental illness: results from a national survey Passed

Wednesday May 15, 2024 13:42 - 13:54 G1

Moderator: Cornelia Van Diepen
Presenter: Ingrid Lindholm

Track: Informal Care and Support

A national survey was conducted in the Autumn 2018-January 2019 by the Swedish Family Care Competence Centre (SFCC) and Linnaeus University. This presentation refers to a sub-study of the national survey with the aim of describing the situation of carers who regularly provide care, help and support to a significant other with mental illness. The survey study intended to provide answers to questions about how much care and support carers provide to their family member/s or friend/s, what support carers receive themselves and how their life situation can be affected by providing care and support. This study is an important contribution to the work being done to develop evidence-based support for carers of people with mental illness in Sweden. The results highlighted that a clear majority of carers of people with mental illness provided care and support on a daily or weekly basis and felt that it was demanding to some extent. Only a small proportion of carers of people with mental illness were offered support from the municipality, and more than half did not know who they could contact if needed. Results indicate the need for more information about where support is available and what type of support can be offered. Support that was widely requested was information and counselling, education, supportive conversations, health screening and health counselling and financial benefits/support. The study results will be discussed in relation to goals in the 1) Swedish National Carers Strategy, namely welfare efforts, a family perspective in health and social care, and support in one's role as a carer. Also, in relation to aspects of 2) Person-centred care; namely the themes of Listen and Together, which can be of significance to carers themselves and in their support to their significant other. 

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Ingrid Lindholm

Lecturers

Profile image for Cornelia Van Diepen

Cornelia Van Diepen Moderator

Assistant Professor
Erasmus University Rotterdam

I am a social medical researcher at the Erasmus School of Healthcare Policy and Management (ESHPM) working together with the GU in the PCC@work project.
My research focuses on the impact of PCC on healthcare professionals and many other topics including women's health, internet research, and international collaboration on nutrition.

Profile image for Ingrid Lindholm

Ingrid Lindholm Presenter

Project manager and practitioner
Nka (Nationellt kompetenscenter anhöriga)

As a practitioner and project manager (SFCCC) within the field carers to people with mental illness, I daily work with issues on carers reality. What is it like to care for a person with mental illness in Sweden today?

The answer you find here at GCPCC as I present the nationel survey "Carers of people with mental illness: results from a national survey".