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Patient and Community Engagement Research (PaCER) program: teaching person-centred, qualitative peer-to-peer research in Canada Passed

Tuesday May 14, 2024 17:18 - 17:30 G1

Moderator: Maria Lindström
Presenters: Ewa Wasniewski, Ingrid Nielssen

Track: Learning and Education

Person-centred health research evidence is essential to person-centred health care.  This oral presentation will introduce the Patient and Community Engagement Research (PaCER) program, an innovative program at the University of Calgary in Canada that teaches participatory health research methodology to sponsored teams of diverse learners with the aim of integrating the patient and community voice, experience, and perspective into health research projects from conception to completion. PaCER students represent diverse cultural, academic, professional, and geographical backgrounds as well as unique health and healthcare experiences. Through the 1-year, online, experiential based program students learn participatory health research methodology and skills, then design, develop, and carry out a qualitative, peer-to-peer research project about a health topic or concern that matters to them and their sponsor. PaCER projects often inform larger research projects and programs, as well as publications, academic conference and community and patient organization presentations. Presenters will include Ingrid Nielssen, PaCER instructor, and Marcia Bruce, PaCER alumni, team support and now program manager for a maternal health research program at the University of Calgary. They will discuss the PaCER approach and program delivery, the role of learners and team sponsors, some past and current PaCER projects, and possibilities for students and projects post-PaCER. It is also hoped to allow some time for audience questions. 

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Ingrid Nielssen, Marcia Bruce, Paul Fairie, Ewa Wasniewski, Maria Santana

Lecturers

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Maria Lindström Moderator

Ass.professor
Umeå universitet

Maria Lindström, MDr, Reg OT, is ass.professor at the dept of Epidemiology and Global Health, Umeå University. She is co-researcher and co-PI of the intervention-project NEC, developing methods and pedagogics for `Narratively Engaged Care´ in elderly care, based at Karolinska Institute. She also leads two intervention and implementation projects based at UmU, focusing on mental health: The Everyday Life Rehabilitation (ELR) model for persons with Serious Mental Illness (SMI) living in supported housing facilities, and the `Unite Youths´; a social and mental health promotive intervention for university students. She has 25 years of teaching experiences in the field of person-centered approaches, including social aspects of being human.

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Ewa Wasniewski Presenter

Director of Domestic Programs
University of Calgary

Patient and Community Engagement Research (PaCER) program: teaching person-centred, qualitative peer-to-peer research in Canada

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Ingrid Nielssen Presenter

AbSPORU, Patient Engagement Coordinator
University of Alberta

Ingrid is the Patient Engagement Coordinator for the Alberta SPOR SUPPORT Unit and the Instructor for the Patient and Community Engagement Research (PaCER) program.
She holds a graduate degree in Gender and Social Justice. As a health equity researcher, she is passionate about co-designing inclusive and meaningful ways to engage those being researched into the health research that impacts them.