Trends in place of death in Sweden and potential associations with palliative care policy and regional infrastructures. Implications for person-centred palliative care Passed
Tuesday May 14, 2024 15:44 - 16:30 Poster Arena
Presenter: Cecilia Larsdotter
Track: Life-limiting conditions, Posters
Poster can be found in location 32.
Background and aim: Equal access to palliative care for all in need thereof, regardless of care place, is stressed as a major public health concern by WHO. Over the past decades dying in the preferred place is recognized for its’ impact on wellbeing and has accordingly evolved into a quality indicator for palliative care. Understanding where people die is vital to support health policies, resource allocation, organisation, and provision of person-centred palliative care. National Swedish clinical guidelines and guidance for palliative care were launched in 2012. We aimed to; follow up the impact of those policies by investigating trends in the place of death within the Swedish population 2013 – 2019; analyse how palliative care is articulated in national disease specific policy documents and guidelines; investigate regional stakeholders’ perspective on the status of palliative and end-of-life care for disease populations in Sweden. Design and methods: We used population-level longitudinal data including all deceased individuals >18 years old with a registered place of death (n=599 137), from public and patient data registers and the national register for palliative care. Trends and associations between place of death and co-variables were investigated on total and subgroup level, by logistic regression- and interaction analyses. For the second part we used a mixed-methods design with document analyses and qualitative focus groups component targeting regional cancer care stakeholders’ perspectives. Results: The results from the register study show a trend towards a decrease in hospital deaths within the total population and on group-level, but with large diagnosis-related and crossregional variations. Analyses of documents and interviews are currently ongoing and will be presented.
Seminar type
Poster
Conference
GCPCC
Authors
cecilia Larsdotter, Joakim Öhlén, Stina Nyblom, Carl-Johan Furst, Anneli Ozanne, Hanna Gyllensten
Lecturers
Cecilia Larsdotter Presenter
Professor, Head of department of nursing science
Sophiahemmet högskola
R.N, PhD, Professor in health care science and Head of department of nursing science in Sophiahemmet University, Stockholm, Sweden.
Main research areas span from macro to micro level perspective: public health, quality and equity aspects of place for care and death of people of old age and life limiting and/or chronic illness and aspects of person-centred palliative care and nursing.