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VALIDITY AND RELIABILITY OF A PATIENT-REPORTED EXPERIENCE MEASURE OF HEALTHCARE PROFESSIONALS’ EMPATHY LEVELS IN THE CARE OF SWEDISH CHILDREN WITH CANCER OR LONG-TERM ILLNESSES Passed

Tuesday May 14, 2024 15:44 - 16:30 Poster Arena

Presenter: Angelica Wiljén

Track: Children and Youth, Posters

Poster can be found in location 10.

Background: Children with long-term illnesses (e.g. cancer) regularly meets with healthcare professionals and requires hospital care. Research shows that these children value participating in empathic and respectful discussions and that most want to be involved in medical consultations. Empathy enables a holistic view of the patient which can improve patient’s compliance and treatment efficiency. Patient-reported experience measures allows children to express their experiences with the care received. Previous studies have shown validated patient-reported experience measures are used inconsistently in Swedish paediatric care with only half of the departments surveying children directly. The Visual CARE Measure also called the Paediatric CARE Measure, is a short questionnaire that gives children and parents the opportunity to express how a meeting with a healthcare professional was experienced. Aim: The aim of this study was to translate and validate a patient-reported experience measure of the levels of empathy demonstrated by healthcare professionals` as perceived by children during procedures in general pediatric care. Method: The translation and cultural adaptation of this measure followed the professional society for health economics and outcomes` research principles of good practice. Construct validity, inter-rater reliability and internal consistency were calculated. Results: A total of 290 children 0-17 years and their parents answered the questionnaire. The preliminary results indicated that children and their parents perceived similar levels of empathy from healthcare professionals’ during a needle procedure or nasal tube insertion. Between a third and a quarter of the respondents reported the maximum score, indicating that respondents used the entire Likert scale. Most participants answered all items, indicating high acceptability for the Swedish version of the measure. Conclusion: The child-friendly patient reported Visual CARE measure can be used in a general paediatric setting for children with cancer to evaluate their perceived levels of empathy displayed by healthcare professionals’.   

Language

English

Seminar type

Poster

Conference

GCPCC

Authors

Angelica Wiljén, John Chaplin, Stefan Nilsson, Katarina Karlsson, Anneli Schwarz

Lecturers

Profile image for Angelica Wiljén

Angelica Wiljén Presenter

PhD-student, pediatric nurse
University of Gothenburg

I´m a pediatric nurse and a PhD-student, and I´m intrested in children's communicative abilities, symptom management, and digital solutions in health care. As part of my PhD I have developed an e-health assessment app for children. My focus is in children with a chronic chondition and I will present a poster about the validity and reliability of an instrument were the child reports nurses levels of empathy.