Poster can be found in location 41.

The overall aim of this thesis is to shed light on the everyday life challenges of people with the hypermobility syndromes Hypermobility Spectrum Disorders (HSD) or hypermobility Ehlers Danlos Syndrome (hEDS). Hypermobility is common and the prevalence is estimated to be around 10-15% of the population. It is hereditary, congenital and occurs naturally in children and is more common in women than in men (1). Characteristics of these syndromes are local or general hypermobility, which can lead to joint instability and musculoskeletal problems, and pain is present in more than 90%. Other common symptoms and co-morbidities that can contribute to a more complex problem and limitations in everyday life are palpitations, dizziness, fatigue, sleep disturbances, headache as well as mental illness such as anxiety and depression (2). Everyday life and its routines are about how we tend to think and to act. Everyday life is something that we often take for granted, but in case of illness it can become a challenge to cope and to be independent. Currently, we do not know much about how pain affects everyday life or the activities that we want to perform in everyday life, for people with hypermobility syndrome. With an increased knowledge about the person's everyday life and with a focus on person-centred care and co-product, it can contribute to robust support to designing a tailored intervention that promotes commitment to living a sustainable and an active life, based on their conditions. In addition, the hypermobility syndromes often debuts at a young age and with the need for repeated interventions from healthcare. In part one, the characteristics of pain in people with hypermobility syndrome are presented and how they affect the activities of everyday life, which are contrasted with other pain syndromes, collected from the Swedish Quality Register for Pain Rehabilitation (SQRP).