Header image for Vitalis 2024

Person-Centred Practice in the stroke patient trajectory- A Scoping Review. Passed

Wednesday May 15, 2024 14:30 - 15:13 Poster Arena

Presenter: Asma Sabri

Track: Posters, Integrated Practice Development

Poster can be found in location 134.

Introduction

Person-centred practice is receiving more attention in healthcare practice and research. Nevertheless, more knowledge is needed to understand person-centred practice in stroke care (Bally et al., 2023; Elvén et al., 2023; Lobo et al., 2021). The aim of this scoping review is therefore to characterise the roles, needs, and perspectives of patients, carers, and healthcare staff regarding person-centred practice throughout the stroke patient trajectory.

Methods

A scoping review was conducted following the nine steps of the Joanna Briggs Institute methodology (Peters et al., 2015). The review identified literature published in English between 2013 and 2023 using three electronic databases (Medline, CINAHL, and EMBASE). Key search terms (“patient-centred care”, “client-centred care”, “person-centred care”, “patient involvement”, “family-centred care” and “stroke”) and inclusion and exclusion criteria were used as strategies to identify relevant articles.

Results

Twenty-eight empirical studies met the inclusion criteria. These studies were from 14 countries and involved patients, carers, and healthcare staff, and both quantitative, qualitative, and mixed methods were used. Eighteen studies were in the non acute phase, mostly within rehabilitation, six covered multiple stages, and four covered acute stroke care. The characteristics of person-centred practice depend on the phase of the stroke trajectory. While person-centred practice is seen as a challenge and barrier in the acute phase, it is well explored and necessary in rehabilitation. The role of patients and carers shifts from being predominantly passive in the acute phase to becoming partners in the rehabilitation phase. Furthermore, patient and carer needs in the acute phase are focused on communication and resourcing, while in the rehabilitation phase, other aspects are also present, such as decision-making and working with patients’ values.

Conclusions 

In this scoping review, the findings document the variability of person-centred practice throughout the stroke patient trajectory. Further research is needed in the acute setting to better identify its characteristics.



References

Bally, E. L. S., Cheng, D., Grieken, A. van, Dam-Nolen, D. H. K. van, Macchione, S., Sanz, M. F., Carroll, Á., Roozenbeek, B., Dippel, D. W. J., & Raat, H. (2023). A Qualitative Study of the Values, Needs, and Preferences of Patients Regarding Stroke Care: The ValueCare Study (3). 23(3), Article 3. https://doi.org/10.5334/ijic.6997 Busetto, L., Stang, C., Hoffmann, J., Amiri, H., Seker, F., Purrucker, J., Ringleb, P. A., Nagel, S., Bendszus, M., Wick, W., Gumbinger, C., & Stroke Consortium RhineNeckar. (2020). Patient-centredness in acute stroke care—A qualitative study from the perspectives of patients, relatives and staff. European Journal of Neurology, 27(8), 1638–1646. https://doi.org/10.1111/ene.14283 Elvén, M., Holmström, I. K., Carlestav, M., & Edelbring, S. (2023). A tension between surrendering and being involved: An interview study on person-centeredness in clinical reasoning in the acute stroke setting. Patient Education and Counseling, 112, 107718. https://doi.org/10.1016/j.pec.2023.107718 Li, M., Xie, H., Luo, Q., Huang, G., Xu, G., Cheng, Y., & Li, J. (2023). A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families. Journal of Multidisciplinary Healthcare, 16, 717–730. https://doi.org/10.2147/JMDH.S388539 Lobo, E. H., Abdelrazek, M., Grundy, J., Kensing, F., Livingston, P. M., Rasmussen, L. J., Islam, S. M. S., & Frølich, A. (2021). Caregiver Engagement in Stroke Care: Opportunities and Challenges in Australia and Denmark. Frontiers in Public Health, 9, 758808. https://doi.org/10.3389/fpubh.2021.758808 Martín-Sanz, M. B., Salazar-de-la-Guerra, R. M., Cuenca-Zaldivar, J. N., Salcedo-PerezJuana, M., Garcia-Bravo, C., & Palacios-Ceña, D. (2022). Person-centred care in individuals with stroke: A qualitative study using in-depth interviews. Annals of Medicine, 54(1), Article 1. https://doi.org/10.1080/07853890.2022.2105393 Peters, M. D. J., Godfrey, C. M., Khalil, H., McInerney, P., Parker, D., & Soares, C. B. (2015). Guidance for conducting systematic scoping reviews. International Journal of Evidence-Based Healthcare, 13(3), 141–146. https://doi.org/10.1097/XEB.0000000000000050 Plant, S. E., Tyson, S. F., Kirk, S., & Parsons, J. (2016). What are the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries? A systematic review and meta-synthesis. Clinical Rehabilitation, 30(9), 921–930. https://doi.org/10.1177/0269215516655856 Plant, S., & Tyson, S. F. (2018). A multicentre study of how goal-setting is practised during inpatient stroke rehabilitation. Clinical Rehabilitation, 32(2), 263–272. https://doi.org/10.1177/0269215517719485 Prior, S. J., Mather, C. A., & Campbell, S. J. (2023). Redesigning Rural Acute Stroke Care: A Person-Centered Approach. International Journal of Environmental Research and Public Health, 20(2), Article 2. https://doi.org/10.3390/ijerph20021581 Røsstad, T., Garåsen, H., Steinsbekk, A., Sletvold, O., & Grimsmo, A. (2013). Development of a patient-centred care pathway across healthcare providers: A qualitative study. 13. https://doi.org/10.1186/1472-6963-13-121


Language

English

Seminar type

Poster

Conference

GCPCC

Authors

Asma Sabri, Karina Aase, Sissel Iren Eikeland Husebø

Lecturers

Asma Sabri Presenter