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PREFERENCES FOR PLACE OF CARE AND DEATH AMONG BEREAVED PEOPLE – A CROSS SECTIONAL SURVEY STUDY Passed

Tuesday May 14, 2024 15:44 - 16:30 Poster Arena

Presenter: Anna O'Sullivan

Track: Life-limiting conditions, Posters

Poster can be found in location 34.

Background: Home is often described as the ideal place for care at the end of life and death. To be cared for and die in one’s preferred place can be considered an essential part of person-centred care at the end of life. Aims: To investigate preferred place for care at the end of life and death for people who had recently lost a family member, and possible associations between preferences, individual characteristics and health related quality of life, as well as associations with quality of care that their family member had received, their family members’ preferred place of death, and involvement in decision-making about care. Methods: A cross-sectional survey with people who had recently lost a family member with advanced illness who died in hospital. Descriptive statistics and multivariable multinominal logistic regression models were employed. Results: Of the 485 participants 70.7 % were women and 36.1% >70 years, 34.5% were partners and 51.8% children of the deceased. The most preferred place for care at the end of life and of death was home. Higher likelihood of preferring in-patient palliative care unit was associated with being female and having a higher education, whereas lower likelihood of preferring nursing home for place of care and of death was associated with having a higher-secondary or a higher education. The relationship of being a partner was associated with a higher likelihood of preferring hospital for place of care and nursing home for place of death. Conclusions: Home was the most preferred place for care at the end of life and death. Bereaved peoples’ experiences of care at the end of life may impact their preferences, especially a close relationship as partner, with higher preference for nursing home and hospital care. Person-centred conversations about preferences for place of care and death considering previous experience are encouraged.  

Language

English

Seminar type

Poster

Conference

GCPCC

Authors

Anna O'Sullivan, Cecilia Larsdotter, Anette Alvariza, Rick Sawatzsky, Joakim Öhlén

Lecturers

Anna O'Sullivan Presenter

Marie Cederschiöld University