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Cultural adaptation of a paediatric person-centred programme for implementation in a South African private hospital Passed

Tuesday May 14, 2024 15:44 - 16:30 Poster Arena

Presenter: Ensa Johnson

Track: Children and Youth, Posters

Poster can be found in location 5.

There is a need to improve the implementation of interventions for comfort and support in conjunction with medical interventions in paediatric care and to give all children, regardless of their communication skills, the opportunity to make decisions about their care whenever possible (Nilsson et al., 2015). Person-centred care (PCC) places a central focus on the patient in partnerships and is regarded as the gold standard of care (Thunberg et al., 2022). PCC interventions positively affect children’s participation in their care. Furthermore, children’s preferred choice for non-verbal communication concerning symptom management motivates the use of digital tools (Thunberg et al., 2022). The University of Gothenburg’s PCC framework includes three simplified care procedures: (i) Initiating a partnership between the patient and the provider through the elicitation of the patient’s story/narrative; (ii) Sustaining a working partnership with shared decision-making and (iii) Co-creation of healthcare and safeguarding the partnership by documenting the patient’s story/narrative, preferences, and participation (Britten et al., 2020). As such, a study is conducted in South Africa to implement PCC in a paediatric setting. This study involves the exploration of the implementation of PCC in a paediatric setting using i) an online education (Mutual Meetings), ii) pictorial support schedules and iii) a digital toolkit (Pictorial Support in Person-Centred Care for Children [PicPecc]) (Wiljén et al., 2022). The focus of the poster will be on sharing insights of the pilot study of the adaptation of the paediatric PCC programme for children, parents, and healthcare professionals. Next, the cultural adaptation to meet the unique needs of children, parents and healthcare professionals in a South African private hospital will be provided. The adaptation of the paediatric PCC programme is co-designed by participants of the programme to ensure a feasible implementation in a hospital. Suggestions for adaptations and practical implementations of the paediatric PCC programme will be presented. 

Language

English

Seminar type

Poster

Conference

GCPCC

Authors

Ensa Johnson, Emma Forsgren, Angelica Höök, Ariné Kuyler, Mary Clasquin-Johnson, Stefan Nilsson

Lecturers

Ensa Johnson Presenter

University of South Africa