Development of an item bank to measure patient-reported experience of person-centred care Passed
Wednesday May 15, 2024 11:45 - 11:51 G2
Moderator: Andreas Fors
Presenter: Lena Rosenlund
Track: Tools and Assessments
Background: Reorienting healthcare towards a more person-centred approach requires new approaches to evaluate whether care is perceived as person-centred from the patients’ perspective. The overall aim of this project was to develop a Rasch-analysed item bank to describe and measure patient experiences of person-centred care for people with chronic or long-term conditions. Methods: From a previous review of extant patient-reported experience measures for Person-centred care, items that best probed the University of Gothenburg Centre for Person-Centred Care and the Person-Centred Coordinated Care conceptual models was selected. The candidate items were translated into Swedish before a qualitative item analyse with two validation rounds using questionnaires, a focus group, and individual interviews with different stakeholders. Resulting items (n = 57) were handed out to 140 adults with various cancer diseases in Sweden and to 501 adults with different types of long-term conditions in the United Kingdom. Rasch analyse was used to examine psychometric properties of the candidate items. Results: Out of 855 items, 155 item was translated to Swedish and 111 items was selected for the qualitative analysis. The language used in many of the extant questionnaires was outdated and even inappropriate for the core principles of PCC. The qualitative item analysis resulted in 57 items, rewritten as statements and to position patients as actively partnering in their care. For the initial analysis there were several indicators of misfit such as signs of local dependency. Local dependency could be accommodated for with superitems and/or by removal of items that did not fit the Rasch measurement model. Conclusion: The results support a hierarchical model of patient perceived person-centred care, from items regarding rapport and communication to higher levels with items representing the partnership, shared decisions, and goals. This item set can be used for development of a future item bank.
Seminar type
Pre-recorded + On-site
Lecture type
Orals
Conference
GCPCC
Authors
Lena Rosenlund, Anna Dencker, Sofie Jakobsson, Ryan Statton, James Close, Helen Lloyd
Lecturers
Andreas Fors Moderator
Professor
University of Gothenburg Centre for Person-Centred Care (GPCC)
Professor.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Sweden.
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Sweden.
Andreas is a professor in nursing, specialising in research on person-centred care across various conditions and contexts. He has approximately 50 publications in scientific journals. Currently, he is the primary investigator of a prospective, longitudinal cohort study combined with a qualitative focus group study. The aim of this project, PCC@Work, is to follow, describe, and assess the impact of applying person-centred care in hospital, primary, and municipal care on work-related health and job satisfaction among health and social care professionals. Additionally, the project explores professionals' experiences regarding their work-related health and job satisfaction while applying person-centred care.
Lena Rosenlund Presenter
RN, MSc, PhD
Regional Cancer Centre Stockholm-Gotland
Lena works at the Regional Cancer Centre in Stockholm, Sweden. She finished her PhD studies 2023 at The Gothenburg Centre for Person-Centred care, Institute of Health and Care sciences in Gothenburg in a project to develop an item bank to measure person-centred care from the patient perspective. Her key interest in research is person-centred care, neuro-oncology, psychometrics and metrology in the health sciences, patient involvement and the use of patient-reported measures in clinical practice and research. She is also involved in the European Association of Neuro-Oncology (EANO) and the EORTC Quality of Life group.