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Experiences from using Patient-Reported Outcome Measures (PROMs) for person-centred care in a Swiss sarcoma center Passed

Wednesday May 15, 2024 11:27 - 11:33 G2

Moderator: Andreas Fors
Presenter: Mayuri Sivanathan

Track: Tools and Assessments

Background: Sarcoma is a rare but life-threatening disease. During the course of the disease, many patients experience physical and psychological burden and therefore a reduced quality of life. To address such patients’ needs from diagnosis until follow-up care an Advanced Practice Nursing (APN) service was implemented in January 2020 at a Swiss university hospital sarcoma center. In this sarcoma center, patient-reported outcome measures (PROMs) were introduced following a multi-center longitudinal feasibility study1. The APN service includes planning and coordinating person-centred care using PROMs. Experiences from using PROMs in the APN service are presented. Methods: The following PROMs were collected from October 2021 to July 2023: EQ-5D-5L-CH (quality of life), Pearlman Mayo Survey of Needs (needs and burden), Distress-Thermometer (distress) and TESS-Toronto Extremity Salvage Score (physical functionality). After primary diagnosis, PROMs were issued as online questionnaires when a treatment included a surgical therapy. PROMs were provided at five time points during patient pathway: after diagnosis, 6 weeks postoperatively, 3-, 6- and 12-months postoperatively. Results: By using PROMs for patients (n=45) within the APN service, their needs could be addressed individually. PROMs allowed to plan nursing consultations, monitor symptoms and to communicate person-centred considering patients’ values and beliefs. The APN responded on priority needs, evaluated initiated interventions and planned new interventions together with patients. Conclusions: There is potential in collecting PROMs systematically to coordinate individual patient care. PROMs enhance person-centred care as patients’ needs are addressed in a timely and effective manner. Also shared decision making is facilitated. Moreover, PROMs enable improving support in patients’ self-management, which encourages patients’ autonomy and in turn supports a trustful APN-patient relationship. 

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Mayuri Sivanathan

Lecturers

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Andreas Fors Moderator

Professor
University of Gothenburg Centre for Person-Centred Care (GPCC)

Professor.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Sweden.
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Sweden.


Andreas is a professor in nursing, specialising in research on person-centred care across various conditions and contexts. He has approximately 50 publications in scientific journals. Currently, he is the primary investigator of a prospective, longitudinal cohort study combined with a qualitative focus group study. The aim of this project, PCC@Work, is to follow, describe, and assess the impact of applying person-centred care in hospital, primary, and municipal care on work-related health and job satisfaction among health and social care professionals. Additionally, the project explores professionals' experiences regarding their work-related health and job satisfaction while applying person-centred care.

Profile image for Mayuri Sivanathan

Mayuri Sivanathan Presenter

Department Clinical Nurse Leader
University Hospital Basel

I'm a registered nurse since 2014. I completed my Master's degree in Nursing Science at the University of Basel in Switzerland in 2019 and I'm registered as Advanced Practice Nurse (APN) since 2020. During my master studies I developed and implemented the role of an APN sarcoma including oncological nursing consultation in Bone and Soft Tissue Tumor Center in Basel (KWUB). I work in the Department Musculoskeletal System at the University Hospital Basel where I'm mainly responsible for practice development and quality improvement. Furthermore, I'm lecturer at the Bern University of Applied Sciences.