Person-centered care in the digital era: models, measurements, and ethics Passed
Thursday May 16, 2024 09:45 - 10:45 G4
Panelists: Carina Dantas, Filipa Ventura, John Chaplin, Sabine Valenta, Souzi Makri, Stefan Nilsson
Track: Digitalisation and eHealth
Electronic health (eHealth) solutions have become a critical area of focus in healthcare innovation, with their relevance depending on the contribution to improving health outcomes, while being respectful of the person’s values and preferences, trustworthy for both clinicians and the person, and sustainable to the healthcare system.
Departing from the ethics of person-centred care, the symposium will entail five presentations covering use-cases of digitalisation in healthcare, including Artificial Intelligence (AI), and discuss them in relation to the European Standard for Patient Involvement in Health Care (CEN/TC450).
Seminar type
Pre-recorded + On-site
Lecture type
Panel
Conference
GCPCC
Authors
Filipa Ventura, Sabine Valenta, Carina Dantas, Souzi Makri, Stefan Nilsson, John Chaplin
Lecturers
Carina Dantas Panelist
Director
SHINE 2Europe, SHAFE Foundation
Carina Dantas has a degree in Law, she is a PhD candidate on Biomedical Sciences (AI ethics) and is the CEO of SHINE 2Europe with over 20 years-experience in areas related to health, social aspects and ICT.
She is the Director of the SHAFE Foundation - Smart Healthy Age-friendly Environments and Chair of the COST Action NET4Age-Friendly, currently gathering around 700 participants from 51 countries.
She is also Committee Member of CEN/CENELEC TC 428, having integrated the Expert Team developing the EU Ethics framework for the ICT Profession; and leading the group of experts designing the Reference Guidelines in the Field of Ethics, Data Privacy and Security, contracted by the AAL Programme.
Carina is evaluator/reviewer for the European Commission, Eureka, AAL, EIT Climate and EIT Digital; Advisory and Ethics Board Member of several Horizon and AAL projects, and reviewer of ICF Journal, Geriatrics and MDPI.
She manages several international projects such as SIRENE | Social Innovation Responsive Environments NETwork, an HORIZON Europe CSA, where she is the Project Coordinator, or RadioVal | International Clinical Validation of Radiomics Artificial Intelligence for Breast Cancer Treatment Planning, an Horizon Europe RIA where she leads WP1 - Multi-stakeholder engagement and social innovation.
She authored or co-authored several refereed journals, book chapters, conference papers and lay publications and performs public presentations in conferences and events regularly.
Filipa Ventura Panelist
Junior Researcher
Nursing School of Coimbra, Coimbra, Portugal
Filipa Ventura has a clinical background in oncology nursing and earned a PhD in Health Care Sciences by the Sahlgrenska Academy (2016). Filipa worked both as a general nurse and an oncology nurse, in Portugal and in Sweden, for about seven years.
She is the principal investigator of one project, regional coordinator of an international research work and collaborates as an investigator in various projects.
In the domain of health care sciences, Filipa carries out research to support the person undergoing cancer treatment in illness assessment and management grounded on person-centred care principles and through eHealth.
From the methodological point of view, she is interested on research methods that allow exploring complex eHealth interventions, particularly pragmatic trials, mixed methods and interpretive description.
John Chaplin Panelist
Psychologist
University of Gothenburg
Interested in Patient Reported Outcome measurement (PROMs)
Sabine Valenta Panelist
Nursing Scientist/Advanced Practice Nurse (APN) & Postdoc
University & University Hospital of Basel
Sabine Valenta embarked on her academic journey in 2011, culminating in the attainment of her master’s degree from the Institute of Nursing Science (INS) at the University of Basel (Switzerland) in 2015. Subsequently, she pursued a PhD program, concurrently maintaining a clinical role at the Department of Hematology, University Hospital Basel (Switzerland), and successfully earned her PhD in May 2020. Currently, she serves as a Postdoctoral Research Fellow at the INS, University of Basel, and holds positions as a nursing scientist/advanced practice nurse (APN) at the University Hospital Basel.
Sabine Valenta is actively engaged in scientific societies, notably the EBMT Nurses Group Research Committee and the Swiss Association for Nursing Science, Academy Society Oncology Nursing. Her research interests cover implementation science, mixed-methods research, adaptation of complex interventions, APN role development, and integration of eHealth technology in healthcare. In her role as Co-Principal Investigator of the ongoing implementation science project SMILe (https://smile.nursing.unibas.ch/), her primary focus involves adapting, implementing, and evaluating an integrated, eHealth-facilitated care model.
Souzi Makri Panelist
EULAR PARE Past Chair
EULAR
EULAR PARE Past Chair
EUPATI Fellow
Cyprus League of People with Rheumatism, Vice President
Patient Research Partner
Stefan Nilsson Panelist
Professor
Institute of Health and Care Sciences
Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability.