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Children with long-term health conditions: preferences for digital and in persons support and involvement in their own care Passed

Tuesday May 14, 2024 15:21 - 15:33 G2

Moderator: Ewa-Lena Bratt
Presenter: Stefan Nilsson

Track: Children and Youth

A long-term health condition (LTHC) affects everyday life for most children and can lead to negative effects on these children’s perception of life and on their health and well-being. When healthcare professionals use a person-centered approach, it makes it easier for them to support children with their individual needs. This can be applied in digital and in person support in health care, but knowledge is scarce about what type of support children would prefer. The aim of this study was first to describe how children with a LTHC experienced digital and in person support as part of their care, second, what type of information they needed and to what extent they considered themselves to be participants in their own care. Twelve children between 10 and 17 years old participated in the study. A qualitative descriptive method was used, with children interviewed either individually or together with a caregiver, with qualitative manifest content analysis. Two categories emerged from the analysis, “Support and involvement in one’s own health care” and “Receiving information in different ways”. Children with a LTHC need information and support that focuses on their own needs. This type of support must be based on both professional and peer-to-peer support.  

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Margaretha Ny presentatör Stefan Nilsson Jenholt Nolbris, Stefan Nilsson, Diana Swolin-Eide, Malin Berghammer

Lecturers

Profile image for Ewa-Lena Bratt

Ewa-Lena Bratt Moderator

Professor
Sahlgrenska academy, University of Gothenburg

Ewa-Lena Bratt is a professor in nursing, specializing in transitions within healthcare. She is a registered nurse with specialized training in healthcare for children and adolescents, with over 30 years of experience in pediatric healthcare, particularly focusing on children and youth with heart defects.

Profile image for Stefan Nilsson

Stefan Nilsson Presenter

Professor
Institute of Health and Care Sciences

Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability.