Children with long-term health conditions: preferences for digital and in persons support and involvement in their own care Passed
Tuesday May 14, 2024 15:21 - 15:33 G2
Moderator: Ewa-Lena Bratt
Presenter: Stefan Nilsson
Track: Children and Youth
A long-term health condition (LTHC) affects everyday life for most children and can lead to negative effects on these children’s perception of life and on their health and well-being. When healthcare professionals use a person-centered approach, it makes it easier for them to support children with their individual needs. This can be applied in digital and in person support in health care, but knowledge is scarce about what type of support children would prefer. The aim of this study was first to describe how children with a LTHC experienced digital and in person support as part of their care, second, what type of information they needed and to what extent they considered themselves to be participants in their own care. Twelve children between 10 and 17 years old participated in the study. A qualitative descriptive method was used, with children interviewed either individually or together with a caregiver, with qualitative manifest content analysis. Two categories emerged from the analysis, “Support and involvement in one’s own health care” and “Receiving information in different ways”. Children with a LTHC need information and support that focuses on their own needs. This type of support must be based on both professional and peer-to-peer support.
Seminar type
Pre-recorded + On-site
Lecture type
Orals
Conference
GCPCC
Authors
Margaretha Ny presentatör Stefan Nilsson Jenholt Nolbris, Stefan Nilsson, Diana Swolin-Eide, Malin Berghammer
Lecturers
Ewa-Lena Bratt Moderator
Professor
Sahlgrenska academy, University of Gothenburg
Ewa-Lena Bratt is a professor in nursing, specializing in transitions within healthcare. She is a registered nurse with specialized training in healthcare for children and adolescents, with over 30 years of experience in pediatric healthcare, particularly focusing on children and youth with heart defects.
Stefan Nilsson Presenter
Professor
Institute of Health and Care Sciences
Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability.