Huvudbild för Vitalis 2024
Profilbild för Children with long-term health conditions: preferences for digital and in persons support and involvement in their own care

Children with long-term health conditions: preferences for digital and in persons support and involvement in their own care Har passerat

Tisdag 14 maj 2024 15:21 - 15:33 G2

Moderator: Ewa-Lena Bratt
Rapportör: Stefan Nilsson

Spår: Children and Youth

A long-term health condition (LTHC) affects everyday life for most children and can lead to negative effects on these children’s perception of life and on their health and well-being. When healthcare professionals use a person-centered approach, it makes it easier for them to support children with their individual needs. This can be applied in digital and in person support in health care, but knowledge is scarce about what type of support children would prefer. The aim of this study was first to describe how children with a LTHC experienced digital and in person support as part of their care, second, what type of information they needed and to what extent they considered themselves to be participants in their own care. Twelve children between 10 and 17 years old participated in the study. A qualitative descriptive method was used, with children interviewed either individually or together with a caregiver, with qualitative manifest content analysis. Two categories emerged from the analysis, “Support and involvement in one’s own health care” and “Receiving information in different ways”. Children with a LTHC need information and support that focuses on their own needs. This type of support must be based on both professional and peer-to-peer support.  

Språk

English

Seminarietyp

Förinspelat + På plats

Föreläsningsformat

Orals

Konferens

GCPCC

Authors

Margaretha Ny presentatör Stefan Nilsson Jenholt Nolbris, Stefan Nilsson, Diana Swolin-Eide, Malin Berghammer

Föreläsare

Profilbild för Ewa-Lena Bratt

Ewa-Lena Bratt Moderator

Professor
Sahlgrenska academy, University of Gothenburg

Ewa-Lena Bratt is a professor in nursing, specializing in transitions within healthcare. She is a registered nurse with specialized training in healthcare for children and adolescents, with over 30 years of experience in pediatric healthcare, particularly focusing on children and youth with heart defects.

Profilbild för Stefan Nilsson

Stefan Nilsson Rapportör

Professor
Institute of Health and Care Sciences

Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability.