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Collaboration between patients, patient organisations and healthcare professionals achieve more for the care of patients with thyroid disease than each of them can achieve on their own Passed
Thursday May 16, 2024 09:45 - 10:45 G3
Panelists: Agneta Lindo, Anna Bergkvist, Christin Lundberg, Helena Filipsson Nyström, Katarina Nydahl
Track: Equity
Background: Views on health care differ from the perspective of health professionals, patients, and patient organisations. The overall vision of the organisations is common, but in practice they operate in different realities. A mutual understanding of the narrative context will improve collaboration and benefit patient care. Seminar outline: The Swedish Knowledge Organisation aims to harmonise care by national guidelines, where patients' perspective is included. Within the area of hyperthyroidism this work resulted in a national guideline where 4 of 5 news were non-medical, but created from the patients’ needs. HFN highlights the process that patient involvement brought to the national guidelines. CL presents the patients’ perspective. In addition to updated medical procedures, we judge that what would improve care outcomes the most was a thyroid nurse, education of health care professionals, a rehabilitation process for those with incomplete recovery, and organising care in a clearer tiered structure so that patients with different levels of disease complexity meet the right expertise. Working with some patients became a catalyst for working with the patient organisation. They created a council of healthcare professionals, and we included them in the university training programme for future thyroid nurses. Together, we held a seminar for the Swedish Parliament to raise awareness of the unmet needs of thyroid patients in our country, where healthcare is mostly tax-funded. KN features the work of the patient organisation and bilateral benefits, and AB discusses rights and opportunities for patients with disabilities. AL leads the discussion to highlight how cooperation can be implemented as effectively as possible; what needs cooperation and what requires us to act as separate entities to achieve the greatest mutual benefit. Conclusions: Together, we can go beyond what each of us can do. This includes new values in healthcare aimed at personcentred care based on patients' needs.
Seminar type
Pre-recorded + On-site
Lecture type
Panel
Conference
GCPCC
Authors
Agneta Lindo, Christin Lundberg, Anna Bergkvist, Katarina Nydahl, Helena Nyström
Lecturers
Agneta Lindo Panelist
Phd student, Nurse
Institute of Medicine , University of Gothenburg
My name is Agneta, and I am a nurse practitioner specialising in thyroid research. I am driven by a passion for developing collaborative healthcare models with patients, with the aim of ensuring optimal care.
Anna Bergkvist Panelist
Ordförande/Chairman
Sköldkörtelförbundet
The chairman of Swedish Thyroid Association since 2019.
Christin Lundberg Panelist
Patient representative
Sköldkörtelförbundet
Swedish Thyroid Association, Stockholm, Sweden.
Helena Filipsson Nyström Panelist
Professor of Endocrinology, Physician
Institute of Medicine , University of Gothenburg
.
Katarina Nydahl Panelist