Navigating Life with Gout: Unmet Needs of Individualized Care Shapes a Process of Adaptation Har passerat
Tisdag 14 maj 2024 15:44 - 16:30 Poster Arena
Rapportör: Helene Sedelius
Spår: Posters, Living with health, illness, suffering
Poster can be found in location 45.
Aim: To explore how people with gout experience the health care and everyday life with gout. Method: A constructivist grounded theory approach employing simultaneous data collection and analysis were conducted. Eight men and four women with gout from three regions in the middle of Sweden who had lived with gout between 1-35 years and were between 40 to 87 years of age participated in semi-structured individual interviews. Results: The navigation of life with gout was represented by the two categories “a mismatch between person´s needs and provision of care” and “a process of adaptation”. The mismatch consisted of unmet needs for pain relief, a sense of insignificance as a person with an often-overlooked disease and lack of individualized and relevant care. The process of adaptation included searching for explanations, developing personal strategies for managing life with gout and habituating to pain and other impairments. Conclusion: The study highlights a critical need for healthcare to adopt a more person-centered approach that aligns with the unique needs and expectations of persons with gout. Health care personnel can provide sufficient care by adhering to person-centered care principles and evidence-based treatment recommendations; reduce the burden of unnecessary pain and thereby decreasing the need for adaptation. Key words: Gout, patient experience, disease impact, grounded theory, health care experience.
Seminarietyp
Poster
Konferens
GCPCC
Authors
Helene Sedelius, Anna Svärd, Malin Tistad
Föreläsare
Helene Sedelius Rapportör
Dalarna University