Towards the State of the Science of Person-centred Care Passed
Wednesday May 15, 2024 13:30 - 14:30 G3
Panelists: Axel Wolf, Brendan McCormack, Inger Ekman, K. Viktoria Stein, Maria J. Santana
Commentator: David Edvardsson
Track: State of science
The knowledge field of person-centred care is extensive and proliferating and marked by a combination of empirically grounded knowledge and major theoretical frameworks. This special session Towards the State of Science in Person-Centred Care will span over the whole afternoon on Wednesday the 15th of May.
The goal is to provide an overview of the current knowledge of ‘person-centred care in a generic sense’ that critically picturise where the theoretical and empirically informed advancement has reached so far. The overall purpose of the initiative is to provide a benchmark to further the scientific progress. The step to take at the GCPCC is to be regarded a first one, which undoubtedly needs to be followed up. This means for example that identifying knowledge gaps most likely will be completed in following steps. Following the special session, a report will be published based on the discussions held.
Outline for this first session
Brief presentations of influential frameworks of person-centred care, including commentary – 60 min
1.The development of person-centred care in relation to broader societal movements, Axel Wolf
2.Person-centred care with a foundation in ethics, Inger Ekman
3.Person-centred practice, Brendan McCormack
4.Person-centred care, Maria J Santana
5.Integrated person-centred care, Viktoria Stein
6.Commentary: David Edvardsson
Seminar type
Pre-recorded + On-site
Lecture type
Panel
Conference
GCPCC
Lecturers
Axel Wolf Panelist
Centre director/Professor
GPCC
Axel Wolf is the Director of the University of Gothenburg Centre for Person-centred Care (GPCC), a leading interdisciplinary research center boasting over 200 national and international researchers dedicated to person-centred care research (www.gpcc.gu.se). He serves in a dual capacity as Professor and Senior Consultant Nurse Anaesthetist at the Sahlgrenska University Hospital and Sahlgrenska Academy at the University of Gothenburg, and as a Professor at OsloMet University in Oslo, Norway. His academic qualifications consist of an Executive MBA from the University of Gothenburg School of Business, Economics & Law, and a PhD in Healthcare Science from the Sahlgrenska Academy.
His research encompasses various dimensions of person-centred healthcare services, including examining the organizational prerequisites for implementing person-centred care, enhancing Patient- and Public Involvement (PPI), and advancing mobile eHealth and Peer-to-Peer platforms. Wolf collaborates with esteemed researchers globally, including those from the USA (Duke University), Spain (University of Navarra), the UK (University of Exeter & University of Plymouth), Finland (Åbo Akademi University), Denmark (IT University of Copenhagen), and Austria (University of Graz). He currently presides over the European standardisation committee (CEN/TC450), focusing on patient involvement in person-centred care, and co-founded the Gothenburg Pain Lab, an innovative research initiative for person-centred pain research (www.gothenburgpainlab.com)."
Brendan McCormack Panelist
University of Sydney
D.Phil (Oxon.), BSc (Hons.), FRCN, FEANS, FRCSI, PGCEA, RMN, RGN, FAAN, MAE
Brendan’s research focuses on person-centredness with a particular focus on the development of person-centred cultures, practices and processes. He has engaged in this work at all levels from theory development to implementation science and through to instrument design, testing and evaluation. He is methodologically diverse, but is most at home in participatory/action research. Whilst he has a particular expertise in gerontology and dementia practices, his work has spanned all specialities and is multi-professional. He also has a particular focus on the use of arts and creativity in healthcare research and development. Brendan has more than 600 published outputs, including >300 peer-reviewed publications in international journals and 12 books. Brendan is a Fellow of The European Academy of Nursing Science, Fellow of the Royal College of Nursing, Fellow of the Royal College of Surgeons in Ireland and Fellow of the American Academy of Nursing. In 2014 he was awarded the ‘International Nurse Researcher Hall of Fame’ by Sigma Theta Tau International. In 2022 Brendan was selected as a member of The Academia Europaea.
Inger Ekman Panelist
Senior professor, Institutionen för vårdvetenskap och hälsa, Centrum för personcentrerad vård (GPCC), Göteborgs universitet
University of Gothenburg
Senior professor
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Sweden.
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Sweden.
Department of Medicine, Geriatrics and Emergency Medicine, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden.
Inger Ekman is the former director and founder of the University of Gothenburg Centre for Person-Centred Care (GPCC) www.gpcc.gu.se. Over eight years, she held the position of head of the Institute of Health and Care Sciences. Additionally, she has served as vice dean at the Sahlgrenska Academy, University of Gothenburg. Between 2013 and 2015, she coordinated a 7th FP EU project, resulting in a roadmap for future health care in Europe. From 2016 - 2020, she was the coordinator for COSTCARES, a European initiative focused on evaluating person-centred care, with 28 partner countries. Inger holds the title of Fellow of the American Academy of Nursing (FAAN), in addition to being the recipient of the Sigma Teta Tau European Nursing Recognition Award and the Carl-Axel Palm Research Award. The primary focus of her research has been on controlled studies evaluating interventions for person-centred care. She has approximately 170 publications in scientific journals. Currently, she is the primary investigator in a randomized controlled trial that assesses remote person-centred care in frail elderly.
K. Viktoria Stein Panelist
Leiden University Medical Centre
Dr. Viktoria Stein is Assistant Professor at the Department for Public Health and Primary Care at Leiden University Medical Centre and joint editor-in-chief of the International Journal of Integrated Care. She is also the president of the Austrian Public Health Association and core group member of Women in Global Health Austria. Viktoria’s recognition as a leading expert in integrated care policy, design and implementation has led to her extensive work as a consultant and expert for international agencies like the World Health Organisation, World Bank, the European Commission, or Accreditation Canada. A special focus throughout her career has been the creation of learning opportunities and environments, which foster knowledge generation and exchange. To this end, Viktoria has promoted the involvement of people, families and communities in every phase of design and implementation of integrated care, as well as on every level of decision making.
Maria J. Santana Panelist
Cumming School of Medicine, University of Calgary
Dr. Maria J. Santana is a health services researcher, patient and family-centred care scientist, Professor in the departments of Pediatrics and Community Health Sciences at the Cumming School of Medicine, University of Calgary, Canada.
Dr. Santana has received training in clinical pharmacy (BPharm, MPharm, London School of Pharmacy, UK, Universidad La Laguna, Spain), public health and clinical epidemiology (PhD, University of Alberta, Canada).
She is the provincial director, Patient Engagement for the Alberta Strategy for Patient-oriented Research (https://absporu.ca/patient-engagement-2/ ). She is the principal investigator for the Person-centred Care Research Team, https://cumming.ucalgary.ca/research/person-centred-care and the academic director of the Patient and Community Engagement in Research, PaCER, https://www.ucalgary.ca/patient-community-engagement-research .
In 2023, she received the President Award by the International Society for Quality of Life Research. Recently, she has collaborated in three major international initiatives: World Health Organization - Patient Engagement: Technical Series on Safer Primary Care; Pan-American Health Organization – World Hypertension League Hypertension Monitoring and Evaluation Framework to aid Hypertension Control Programs; and the International Consortium for Health Outcome Measurement Adult Diabetes. She is a scientific advisor for the Gothenburg Person-centred Centre, University of Gothenburg, Sweden.
David Edvardsson Commentator
Professor
La Trobe University, GPCC, Gothenburg University
Professor Edvardsson is a recognized international authority in research across care sciences, health promotion and population health, ageing and dementia. He has a strong research track record as evidenced by a Scopus h-index of 44, based on 176 documents and 41 507 citations (February 14, 2024). Prof Edvardsson has a PhD in nursing and medical sciences from the University of Umea, Sweden, has a Master of Nursing Research and a Bachelor of Nursing, as well as currently undertaking a Master of Business Administration at La Trobe University (MBA). His ongoing scientific research is located across five themes: Health-promotion, care and support for older people: Global and population health, ill-health and burden of disease: Developing positive health outcome measures and health-promoting interventions: Person-centred care, health and quality of life: Health-promoting environments. Health-promotion, care and support for older people.