A Core Outcome Set for the Evaluation of New Healthcare Programs in Sweden Passed
Wednesday May 15, 2024 14:30 - 15:13 Poster Arena
Presenter: Benjamin Harvey
Track: Posters, Evaluation of Interventions
Poster can be found in location 106.
OBJECTIVES: Evaluating healthcare programmes that focus on shared decision-making and participation, e.g., person-centred care (PCC), regularly report beneficial results regarding symptom burden and self-efficacy. However, traditional outcomes used within economic evaluations are less sensitive to these changes, thereby limiting the availability of information for decision making and prioritisation. The aim of this study is to develop a core outcome set (COS) for the evaluation of such programmes, including economic evaluations. METHODS: This study included participants representing 4 stakeholder groups; patients, healthcare workers, researchers, and managers/leaders. A questionnaire was developed based on outcomes from a systematic review on the cost-effectiveness of PCC, complemented with pilot interviews with stakeholder representatives. A Delphi study was conducted in 2 rounds, where outcomes were scored from 1-9 based on their perceived importance for the decision-making process of each stakeholder group. Participants could suggest new outcomes during the 1st round that were included in round 2. After 2 rounds, an outcome was deemed critical to the core outcome set if scored between 7-9 by at least 70% of the participants. After an opportunity for all stakeholder representatives to provide feedback, a consensus meeting will be held with 2 patient representatives (Autumn 2023) to determine the final COS. RESULTS: Outcomes were grouped into; health and quality of life, capabilities and prerequisites, process measures related to care implementation or digitalization, and health economics. In round 1, 58 participants (patients n=14; healthcare workers n=16; researchers n=17; managers/leaders n=10) scored 52 outcomes and recommended a further 13 for inclusion in round 2. In round 2, 46 participants had re-scored the outcomes (missing n=12), with scores being changed between scoring thresholds on 168 separate occasions. CONCLUSIONS: The preliminary COS at the completion of round 2 highlights stakeholder preferences towards outcomes corresponding to capabilities and prerequisites, and process measures related to care implementation.
Seminar type
Poster
Conference
GCPCC
Authors
Benjamin Harvey, Emmelie Barenfeld , Joakim Öhlén, Jana Bergholtz, Carl Johan Orre, Hanna Gyllensten
Lecturers
Benjamin Harvey Presenter
University of Gothenburg