Group discussions toward state of the science in person-centred care Passed
Wednesday May 15, 2024 16:30 - 17:30 G4
Moderator: Joakim Öhlén
Workshop facilitators: Andreas Fors, Anna-Karin Edberg, Axel Wolf, Bradi Granger, Brendan McCormack, Chris Graham, David Edvardsson, Elizabeth Hanson, Emma Forsgren, Erna Haraldsdottir, Ida Björkman, Inger Ekman, Karl Swedberg, Maria J. Santana, Mattias Tranberg, Sepideh Olausson, Stefan Nilsson
Track: State of science
For detailed information see https://gcpcc.org/state-of-science/
Seminar type
On site only
Lecture type
Panel
Conference
GCPCC
Lecturers
Joakim Öhlén Moderator
Professor, Former Centre Director
GPCC, University of Gothenburg Centre for Person-Centred Care
Joakim Öhlén, PhD, RN, is professor in nursing at the Sahlgrenska Academy, University of Gothenburg in Sweden, and has a clinical appointment as senior consultant nurse to the Palliative Centre at Sahlgrenska University Hospital in Gothenburg. He is the former Centre Director at the University of Gothenburg Centre for Person-Centred Care and leads a research programme on the implementation of person-centred palliative care. He has extensive teaching experience in palliative care, nursing and research methods, and is appointed as Excellent Teacher at the University of Gothenburg.
Personal page https://www.gu.se/en/about/find-staff/joakimohlen
Andreas Fors Workshop facilitator
Professor
University of Gothenburg Centre for Person-Centred Care (GPCC)
Professor.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Sweden.
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Sweden.
Andreas is a professor in nursing, specialising in research on person-centred care across various conditions and contexts. He has approximately 50 publications in scientific journals. Currently, he is the primary investigator of a prospective, longitudinal cohort study combined with a qualitative focus group study. The aim of this project, PCC@Work, is to follow, describe, and assess the impact of applying person-centred care in hospital, primary, and municipal care on work-related health and job satisfaction among health and social care professionals. Additionally, the project explores professionals' experiences regarding their work-related health and job satisfaction while applying person-centred care.
Anna-Karin Edberg Workshop facilitator
Professor
Kristianstad University
I work as a Professor in Nursing at Kristianstad University and am the Director of Postgraduate Education in Personcentredness for Health and Wellbeing. My research field mainly concerns care of older people, personcentredness, existential lonelines and palliative care.
Axel Wolf Workshop facilitator
Centre director/Professor
GPCC
Axel Wolf is the Director of the University of Gothenburg Centre for Person-centred Care (GPCC), a leading interdisciplinary research center boasting over 200 national and international researchers dedicated to person-centred care research (www.gpcc.gu.se). He serves in a dual capacity as Professor and Senior Consultant Nurse Anaesthetist at the Sahlgrenska University Hospital and Sahlgrenska Academy at the University of Gothenburg, and as a Professor at OsloMet University in Oslo, Norway. His academic qualifications consist of an Executive MBA from the University of Gothenburg School of Business, Economics & Law, and a PhD in Healthcare Science from the Sahlgrenska Academy.
His research encompasses various dimensions of person-centred healthcare services, including examining the organizational prerequisites for implementing person-centred care, enhancing Patient- and Public Involvement (PPI), and advancing mobile eHealth and Peer-to-Peer platforms. Wolf collaborates with esteemed researchers globally, including those from the USA (Duke University), Spain (University of Navarra), the UK (University of Exeter & University of Plymouth), Finland (Åbo Akademi University), Denmark (IT University of Copenhagen), and Austria (University of Graz). He currently presides over the European standardisation committee (CEN/TC450), focusing on patient involvement in person-centred care, and co-founded the Gothenburg Pain Lab, an innovative research initiative for person-centred pain research (www.gothenburgpainlab.com)."
Bradi Granger Workshop facilitator
Duke University Health System & School of Nursing
Dr. Granger is a Professor at the Duke University School of Nursing, the Duke-Margolis Center for Health Policy, and Director of the Duke Heart Center Nursing Research Program.
Her research is focused on health system and health policy support for cardiovascular person-centered care. Specific foci of research include health equity, health behaviors and self-management, medication use in chronic illness, and strategies to facilitate safe care transitions across settings of care, from hospital to home and community-based settings.
Dr. Granger has published and lectured extensively, both nationally and internationally, on methods and interventions for person-centered medication management in complex chronic illness.
As a mentor to clinicians and students, she has led a number of team-based studies in the field of cardiovascular care resulting in publications and featured work in Journal of the American Medical Association, the American Heart Journal, the Journal of Advanced Nursing, Patient Education and Counseling, the Lancet, the European Journal of Cardiovascular Nursing, and others.
Brendan McCormack Workshop facilitator
University of Sydney
D.Phil (Oxon.), BSc (Hons.), FRCN, FEANS, FRCSI, PGCEA, RMN, RGN, FAAN, MAE
Brendan’s research focuses on person-centredness with a particular focus on the development of person-centred cultures, practices and processes. He has engaged in this work at all levels from theory development to implementation science and through to instrument design, testing and evaluation. He is methodologically diverse, but is most at home in participatory/action research. Whilst he has a particular expertise in gerontology and dementia practices, his work has spanned all specialities and is multi-professional. He also has a particular focus on the use of arts and creativity in healthcare research and development. Brendan has more than 600 published outputs, including >300 peer-reviewed publications in international journals and 12 books. Brendan is a Fellow of The European Academy of Nursing Science, Fellow of the Royal College of Nursing, Fellow of the Royal College of Surgeons in Ireland and Fellow of the American Academy of Nursing. In 2014 he was awarded the ‘International Nurse Researcher Hall of Fame’ by Sigma Theta Tau International. In 2022 Brendan was selected as a member of The Academia Europaea.
Chris Graham Workshop facilitator
Group Chief Executive
Picker Institute Europe
Chris has been Picker’s CEO since 2017, leading the organisation as well as contributing to its research and practice.
Prior to becoming CEO, Chris led Picker’s research division from 2011 to 2016. In this post, he was responsible for overseeing the development and coordination of large-scale research and evaluation projects, including the NHS Patient and Staff Survey Coordination Centres, run on behalf of the Care Quality Commission (CQC) and NHS England, respectively. He has also worked at the CQC and its predecessor, the Healthcare Commission, as well as undertaking other roles at Picker from 2004 to 2007.
Chris has particular interests in person centred care and in research on staff, patient, and user experiences of health and care. He has undertaken research and written widely on these subjects. Chris read Experimental Psychology at Pembroke College, University of Oxford.
Chris can be found on Twitter @ChrisGrahamUK.
David Edvardsson Workshop facilitator
Professor
La Trobe University, GPCC, Gothenburg University
Professor Edvardsson is a recognized international authority in research across care sciences, health promotion and population health, ageing and dementia. He has a strong research track record as evidenced by a Scopus h-index of 44, based on 176 documents and 41 507 citations (February 14, 2024). Prof Edvardsson has a PhD in nursing and medical sciences from the University of Umea, Sweden, has a Master of Nursing Research and a Bachelor of Nursing, as well as currently undertaking a Master of Business Administration at La Trobe University (MBA). His ongoing scientific research is located across five themes: Health-promotion, care and support for older people: Global and population health, ill-health and burden of disease: Developing positive health outcome measures and health-promoting interventions: Person-centred care, health and quality of life: Health-promoting environments. Health-promotion, care and support for older people.
Elizabeth Hanson Workshop facilitator
Linnaeus University, Eurocarers
Elizabeth leads the ‘Informal Carers, Care and Caring’ research group at Linnaeus University which acts as the research arm of the Swedish Family Care Competence Centre (Nka). Nka is a national centre of excellence on informal (family) care funded by the Swedish Ministry of Health and Social Affairs. Elizabeth acts as expert advisor to the National Board of Health and Welfare Sweden on carers issues. She has a long- standing interest in informal care and over the last twenty-five years Elizabeth has led a variety of national and international projects in partnership with informal carers, patients/service users, health and social care practitioners, decision makers, policy makers and NGOs. The goal being to strengthen the knowledge base and stimulate evidence-based policies and practices for and with carers across the life course. Elizabeth is a board member and prior president of Eurocarers, the European association working for informal carers. She established the Eurocarers Research Working Group whose aim is to feed into the definition of evidence-based policy making on the role and added value of informal carers.
Emma Forsgren Workshop facilitator
Researcher
University of Gothenburg
Emma has as Master of Science in Speech and Language Pathology and is a Doctor of Philosophy in Medical Science.
Currently employed as a Researcher and Project lead for education and utilisation of research within Gothenburg Centre for Person-Centred Care (GPCC), at the Institute of Health and Care Sciences, Sahlgrenska academy, University of Gothenburg.
Erna Haraldsdottir Workshop facilitator
Professor in Nursing
Queen Margaret University
Professor in Nursing, Deputy Head of Nursing and Director of the Centre for Person-centred Practice Research at Queen Margaret University. Since completing my nursing degree in Iceland, palliative care has been my field of practice and research. I have led on a number of person-centred practice development projects , educational teaching programmes and research projects in palliative care both nationally and internationally. I also serve on a number of development groups in relation to palliative care education and research and have published widely in palliative care research journals.
Ida Björkman Workshop facilitatorOrganizer
GPCC
Researcher, Manager of the GCPCC organizing committee
Inger Ekman Workshop facilitator
University of Gothenburg, GPCC
Karl Swedberg Workshop facilitator
University of Gothenburg
Maria J. Santana Workshop facilitator
Cumming School of Medicine, University of Calgary
Dr. Maria J. Santana is a health services researcher, patient and family-centred care scientist, Professor in the departments of Pediatrics and Community Health Sciences at the Cumming School of Medicine, University of Calgary, Canada.
Dr. Santana has received training in clinical pharmacy (BPharm, MPharm, London School of Pharmacy, UK, Universidad La Laguna, Spain), public health and clinical epidemiology (PhD, University of Alberta, Canada).
She is the provincial director, Patient Engagement for the Alberta Strategy for Patient-oriented Research (https://absporu.ca/patient-engagement-2/ ). She is the principal investigator for the Person-centred Care Research Team, https://cumming.ucalgary.ca/research/person-centred-care and the academic director of the Patient and Community Engagement in Research, PaCER, https://www.ucalgary.ca/patient-community-engagement-research .
In 2023, she received the President Award by the International Society for Quality of Life Research. Recently, she has collaborated in three major international initiatives: World Health Organization - Patient Engagement: Technical Series on Safer Primary Care; Pan-American Health Organization – World Hypertension League Hypertension Monitoring and Evaluation Framework to aid Hypertension Control Programs; and the International Consortium for Health Outcome Measurement Adult Diabetes. She is a scientific advisor for the Gothenburg Person-centred Centre, University of Gothenburg, Sweden.
Mattias Tranberg Workshop facilitator
Palliativt utvecklingscentrum
Sepideh Olausson Workshop facilitator
Associate professor
Gothenburg University
I'm an Associate professor at Gothenburg University and Critical Care Nurse at background with a joint position at Sahlgrenska University Hospital. I'm also director of the sektion for long term and critical illness at Institute for health caring sciences. My research is focused on different care environments and critical care nuring related topics. Feel free to reach out, you will find me at : sepideh.olausson@gu.se
Stefan Nilsson Workshop facilitator
Professor
Institute of Health and Care Sciences
Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability.