Pre-conference: Co-designed workshop on best practices for public involvement in health research and healthcare governance
Tisdag 14 maj 2024 09:00 - 12:00 J2
Workshop facilitators: Eskil Degsell, Jana Bergholtz, Jeanette Tenggren Durkan, Joy Milne, Margareta Haag, Maria J. Santana, Sandra Zelinsky, Sara Riggare
Spår: Workshops
It doesn't matter, if you are new to public involvement or if you are already an expert. Everyone is welcome!
In this workshop, we want to focus on learning from each other through engaging discussions.
Specifically, you will be able to choose from the following topics:
1) Patient and public involvement for beginners (SAMKA recommendations: https://www.samka.se/material)
2) How to facilitate patient advisory councils?
3) Informal caregivers' perspective(s): Why are they missed? What are the barriers?
4) Communication/negotiation between researchers and patient/carer-representatives
5) Involving people with lived experience in healthcare research: Why? & What are best practices?
6) Guidance for public involvement from various countries (Are you already an expert in PPI? Help us expand a resource library we have started! Please bring a laptop!)
7) Any other potentially emerging topic.
Register for the workshop via: trippus.net/WorkshopsGCPCC
Seminarietyp
Enbart på plats
Föreläsningsformat
Workshop
Konferens
GCPCC
Föreläsare
Eskil Degsell Workshop facilitator
Jana Bergholtz Workshop facilitator
Patient Co-Researcher
GPCC, University of Gothenburg
Jeanette Tenggren Durkan Workshop facilitator
Joy Milne Workshop facilitator
Margareta Haag Workshop facilitator
Ordförande Nätverket mot cancer
Maria J. Santana Workshop facilitator
Dr. Maria J. Santana is a health services researcher, patient and family-centred care scientist, Professor in the departments of Pediatrics and Community Health Sciences at the Cumming School of Medicine, University of Calgary, Canada.
Dr. Santana has received training in clinical pharmacy (BPharm, MPharm, London School of Pharmacy, UK, Universidad La Laguna, Spain), public health and clinical epidemiology (PhD, University of Alberta, Canada).
She is the provincial director, Patient Engagement for the Alberta Strategy for Patient-oriented Research (https://absporu.ca/patient-engagement-2/ ). She is the principal investigator for the Person-centred Care Research Team, https://cumming.ucalgary.ca/research/person-centred-care and the academic director of the Patient and Community Engagement in Research, PaCER, https://www.ucalgary.ca/patient-community-engagement-research .
In 2023, she received the President Award by the International Society for Quality of Life Research. Recently, she has collaborated in three major international initiatives: World Health Organization - Patient Engagement: Technical Series on Safer Primary Care; Pan-American Health Organization – World Hypertension League Hypertension Monitoring and Evaluation Framework to aid Hypertension Control Programs; and the International Consortium for Health Outcome Measurement Adult Diabetes. She is a scientific advisor for the Gothenburg Person-centred Centre, University of Gothenburg, Sweden.
Sandra Zelinsky Workshop facilitator
Sara Riggare Workshop facilitator
PhD & Patient researcher, Uppsala University, Participatory eHealth and Health Data Research Group, Sweden