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Profilbild för Effects of a person-centered care intervention on the social dimension of people with chronic heart failure (SHARE Study): A study protocol of a randomized controlled trial

Effects of a person-centered care intervention on the social dimension of people with chronic heart failure (SHARE Study): A study protocol of a randomized controlled trial Har passerat

Tisdag 14 maj 2024 14:57 - 15:09 G4

Moderator: Lilas Ali
Rapportör: Jesús Martín-Martín

Spår: Comprehensive and Integrated Care

Background: People with chronic heart failure live in a complex situation that significantly affects both their social well-being and other health outcomes due to symptomatic burden and psychosocial factors. Interventions on social life dimensions should be offered to support maintained engagement in social life and roles and having relationships beyond the family. Adopting a person-centered care (PCC) approach implies moving toward a care model in which health plans are centered on patients' wishes, and they take an active role in their care and decision-making. Aims: To evaluate the effectiveness of a PCC intervention on the social dimension of people with CHF. Setting: Three Outpatient Heart Failure Units in Spain. Design: A multicenter randomized controlled trial following the new MRC framework for complex intervention using a program theory and logic model, and co-created together with patients and clinicians. The effect of a three-month intervention of a person-centered face-to-face and telephone intervention, in addition to standard care, versus usual care alone, will be evaluated in a sample of 340 people with CHF. Methods: The intervention will be developed by a multidisciplinary team of registered nurses, physicians, social workers, and psychologists from each hospital. The intervention's effect on patients' ability to participate in social roles and activities, level of perceived social isolation, and perception of social support will be measured, as the perception of self-efficacy, level of self-care, anxiety, and depression, and their overall health experience, as well as the rates of hospitalization, decompensation, emergency room visits, and death. The multidisciplinary team led by registered nurses will create a partnership with each patient, allowing them to express their goals, wishes, and resources regarding their health situation in a narrative. Both will jointly develop a person-centered health plan that will reflect short- and long-term goals, identify the resources available to the person and how they want to receive support from healthcare professionals. Subsequently, a monthly telephone follow-up will be maintained for three months to update the personal health plan. Tentative results will be presented at the conference.   

Språk

English

Seminarietyp

Förinspelat + På plats

Föreläsningsformat

Orals

Konferens

GCPCC

Authors

Maddi Olano-Lizarraga, Jesús Martín-Martín, Emmelie Barenfeld, Andreas Fors, Axel Wolf

Föreläsare

Profilbild för Lilas Ali

Lilas Ali Moderator

Associate Professor
University of Gothenburg

Associate Professor and researcher at the University of Gothenburg. Specialist nurse in psychiatry and holds a combined position at the Psychiatric department of Sahlgrenska University Hospital. My research focuses on internet and person-centered communication technological solutions in psychiatric care. I am also the chairperson of the Swedish Nurses' Association's ethical council and an member of the Swedish National Council on Medical Ethics, where I have been involved in discussions about ethical issues related to AI in healthcare.

Profilbild för Jesús Martín-Martín

Jesús Martín-Martín Rapportör

Associate Professor
Assistant Professor. Innovation for Person-Centre

I am an associate professor at the Faculty of Nursing of the UNAV, coordinating the International Nursing Program and teaching undergraduate and postgraduate courses. I am a researcher of the research group 'Research in Nursing Care' of the Institute of Health Research of Navarra (IdiSNA). I have also been part of the research group 'Innovation for a person-centered care' since 2014. I am actively involved in the research line 'Strategies to implement person/family centered care in chronic heart failure' and 'Strategies to implement person/family centered care in palliative care'. My research focuses primarily on improving the health experiences of individuals and families with advanced and terminal chronic conditions.

I have participated in several research projects in this line, including the one funded by ISCIII-FEDER funds that ended in May 2022, where a unique scale to assess changes in the experience of living with CHF was designed and validated. Thus, I have experience in research studies with quantitative and qualitative methodologies in populations with advanced and terminal chronic processes. I have completed a 7-month postdoctoral stay at Boston College and Massachusetts General Hospital. In addition, I have collaborated with The Gothenburg Centre for Person-Centred Care (GPCC) in Sweden since 2021. I am a member of the Board of the Spanish Society of Palliative Care (SECPAL) and the Navarre Society of Palliative Care (PALIAN). I'm also an Association of Cardiovascular Nursing & Allied Professions (ACNAP) member.