How could clinical services respond to the person-centred care needs of adults living with heart failure? A qualitative cross-sectional study with patients, caregivers and healthcare professionals in Thailand Har passerat
Onsdag 15 maj 2024 10:33 - 10:45 G4
Moderator: Karen Van Zijl
Rapportör: Alessandra Giusti
Spår: Global and Local Perspectives
Introduction: Heart failure is a leading cause of serious health-related suffering in low- and middle-income countries (LMICs), and is associated with high symptom burden, clinical uncertainty, and unplanned, prolonged hospital admissions. Person-centred care (PCC), a critical component of high-quality healthcare, is particularly vital in the context of a serious illness such as heart failure. However, PCC evolved in a few high-income countries and there are limited data exploring this concept in this population in LMICs. The aim of this study was to generate evidence-based recommendations for relevant PCC for individuals with heart failure in Thailand, with potential for adaptation in other settings. Methods: Cross-sectional qualitative study. In depth, semi-structured interviews were conducted in Thailand with heart failure patients (n=14), their caregivers (n=10) and HCPs (n=12). Framework analysis was conducted with deductive coding to populate an a priori coding frame based on an existing model of PCC, with further inductive coding of novel findings to expand the frame. Results: The study findings reveal specific practice actions that deliver PCC for persons living with heart failure in Thailand. Such actions include proactive responses to physical, psychological, social, relational and information needs of patients and caregivers, engaging patients and families in symptom management, providing opportunities for patients to be cared for in the community and at home, and considering and responding to the social determinants of health and healthcare access. Conclusion: Person-centred policy and healthcare must aim to address the social determinants of health and illness, and person-centred interventions for heart failure patients must be tailored to correct for prevalent negative social determinants. To enable PCC, health systems should bolster local, decentralised levels of healthcare service provision, placing focus on community- and home-based care. Heart failure patients and caregivers must be supported to self-care and self-manage, including how to recognise symptoms, take appropriate action, and using home therapeutic equipment.
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GCPCC
Authors
Alessandra Giusti, Panate Pukrittayakamee , Kamonporn Wannarit , Lakkana Thongchot , Satit Janwanishstaporn , Kennedy Nkhoma
Föreläsare
Karen Van Zijl Moderator
Zuid Afrikaans Hospital / University of Pretoria
Dr Karen van Zijl, Ph.D., CCLS
PhD - Educational Psychology (UJ)
Advanced Certificate in Child and Youth Studies – Child Life Specialisation (UFV, Canada)
M.Diac - Play Therapy, Graduated Summa Cum Laude (UNISA)
Honours Bachelor of Arts Degree – Psychology (UNISA)
Bachelor of Arts Degree – Education and Psychology, Graduated Summa Cum Laude (UP)
Higher Education Diploma in Early Childhood Education, Graduated Summa Cum Laude
(UP)
Dr van Zijl is a Certified Child Life Specialist and Play Therapist working in private
practice and at Zuid Afrikaans Hospital. She is a part time lecturer at the University
of Pretoria. She forms part of the task force for the International Society of Paediatric
Oncology (SIOP) on Paediatric Oncology in Developing Countries (PODC) with a
focus on Patient, Family and Stakeholder Engagement (PFSE). She is also a
member of the research task force for Pictorial Support in Person-centred Care for
Children (PicPecc) at the Institute of Health and Care Sciences - University of
Gothenburg, Sweden in conjunction with the University of Pretoria.
Alessandra Giusti Rapportör
Research Associate
University of Cambridge
Alessandra is a Postdoctoral Research Associate at the University of Cambridge within The Healthcare Improvement Studies Institute.
She has conducted research on the meaning and practice of person-centred care for serious illnesses in a variety of contexts internationally. This research resulted in an evidence-based framework and recommendations for clinicians, healthcare managers and policy makers on how to implement quality, person-centred care.
Previously, she also worked as a third-sector management consultant, supporting a range of health and community care providers in the UK in developing service solutions, operational strategies, and collecting impact data.
Alessandra has a BSc in Natural Sciences from Durham University, an MSc in Global Health from Uppsala University, and a PhD in Health Services Research from King’s College London.
Alessandra's research interests lie in how local health systems and practices can be transformed to improve patient experience, patient outcomes and broader population wellbeing. She is committed to impact driven interdisciplinary research on the social determinants of health and healthcare access, healthcare team cultures and values, and the quality of communication between healthcare professionals, patients and families.