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Improving Transition and Transfer: Person-Centered Care for Adolescents with Long-Term Conditions – The Stepstones Project Experience. Passed

Tuesday May 14, 2024 16:30 - 17:30 G3

Panelists: Anna Lena Brorsson, Carina Sparud Lundin, Ewa-Lena Bratt, Markus Saarijärvi, Sandra Skogby, Åsa Burström

Track: Children and Youth

Young people with long-term conditions represent a growing group of the population due to recent decades advancements in treatment of life-threating conditions. Nevertheless, the integration between pediatric and adult care has been deficient, creating the potential for adverse events that can compromise the well-being of young people. Transition programs have been proposed to prevent these adverse events and improve quality of care and patients experience of care. However, the implementation of person-centered transitional care remains, on a broad scale, scarce. The aim of this symposium is to describe the development, outcome, application, and implementation of a person-centered transitional care program for adolescents with long-term conditions. The symposium will include:   Theme 1 Closing the Healthcare Gap for Adolescents with Long-Term Conditions: Transforming Transitional Care – the Stepstones project. This theme will give a background to the healthcare problem from adolescents, care providers, and stakeholders perspectives. We will present how the Stepstones transition program was developed using patient and stakeholder involvement, and share a summary of results from the Stepstones project. Theme 2 Practical applications of the Stepstones transition program? The second theme will highlight practical applications to promote person-centered care in encounters with adolescents following the experiences from the Stepstones project. Different strategies, tools and outcomes reflecting the cornerstones in person-centered care will be presented. Theme 3 Evolution and Expansion: Implementing the Stepstones Transition Program for Enhanced Transitional Care across Diverse Settings. The final theme will discuss the remaining challenges and opportunities to implement transition programs as well as introducing the program to other target groups and adaption to a digital delivery.   The symposium will end with a 10-minute panel discussion where we will invite patient representatives, researchers and clinicians, and the audience to participate.   

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Panel

Conference

GCPCC

Authors

Carina Sparud Lundin, Markus Saarijärvi, Anna Lena Brorsson, Åsa Burström, Sandra Skogby, Ewa-Lena Bratt

Lecturers

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Anna Lena Brorsson Panelist

Specialistnurse
Karolinska Institutet

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Carina Sparud Lundin Panelist

Institute of Health and Care Sciences

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Ewa-Lena Bratt Panelist

Professor
Sahlgrenska academy, University of Gothenburg

Ewa-Lena Bratt is a professor in nursing, specializing in transitions within healthcare. She is a registered nurse with specialized training in healthcare for children and adolescents, with over 30 years of experience in pediatric healthcare, particularly focusing on children and youth with heart defects.

Sandra Skogby Panelist

Sahlgrenska University Hospital

Åsa Burström Panelist