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Person centred care for all: understanding and improving the representativeness of health services and research Passed

Wednesday May 15, 2024 09:45 - 10:45 J2

Workshop facilitators: Amy Tallett, Chris Graham, Jenny King

Track: Equity, Workshops

This workshop will provide attendees with a framework for improving the representativeness of person centred care research. Person centred care research frequently involves the collection of patient and public views. This may be quantitative (eg patient experience surveys) or qualitative (eg ethnography). Typically the focus is on understanding the needs, preferences, and experiences of people who use health and care. There is a growing focus on issues of equality, diversity, and inclusion. Despite this, person centred research often addresses only limited barriers to representativeness, which can lead to a superficial interpretation of representation, undermining efforts to understand equality and equity. We propose a framework of non-representation in research that identifies five causes for users to address: Non-access - groups are excluded because of their inability or unwillingness to access care services. Non-invitation - groups are excluded in selection, often for practical reasons. Non-response - groups are systematically less likely to respond to requests to participate. Non-identification - research fails to identify people from different communities. Non-review - data is not analysed according to available diversity markers, or issues important to certain communities are not considered. Workshop content: CG to explain the framework, with clear examples and discussion of the impact of underrepresentation - 20 minutes. CG, JK and AT to facilitate group discussions of two case study projects - one quantitative and one qualitative - to analyse barriers to representation and identify improvements - 30 minutes. We will use paper templates, pens, and post-its to record the discussion. Reconvene to one group providing feedback in a plenary discussion led by CG - 10 minutes. For inclusivity and to support participation, plain English will be used throughout. Following the event we will - with consent - e-mail participants the workshop content including presentation, case studies and analysis conducted in the groups.  

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Workshop

Conference

GCPCC

Authors

Chris Graham, Jenny King, Amy Tallett

Lecturers

Profile image for Amy Tallett

Amy Tallett Workshop facilitator

Head of Research
Picker Institute Europe

Amy is Head of Research at Picker, where she is accountable for the design, management, delivery and financial performance of a range of research and evaluation projects, to facilitate the delivery of high-quality health and social care.

Amy has a wealth of experience in designing methodologies for gathering patient feedback, including qualitative and quantitative research approaches that are accessible to the relevant audience. She has developed patient feedback surveys across a range of areas including children’s cancer care, pancreatic cancer, sickle cell disease, NHS 111, neonatal care and health visiting. She also provides expert consultancy in service user experiences of health and social care and in person-centred care.

Profile image for Chris Graham

Chris Graham Workshop facilitator

Group Chief Executive
Picker Institute Europe

Chris has been Picker’s CEO since 2017, leading the organisation as well as contributing to its research and practice.

Prior to becoming CEO, Chris led Picker’s research division from 2011 to 2016. In this post, he was responsible for overseeing the development and coordination of large-scale research and evaluation projects, including the NHS Patient and Staff Survey Coordination Centres, run on behalf of the Care Quality Commission (CQC) and NHS England, respectively. He has also worked at the CQC and its predecessor, the Healthcare Commission, as well as undertaking other roles at Picker from 2004 to 2007.

Chris has particular interests in person centred care and in research on staff, patient, and user experiences of health and care. He has undertaken research and written widely on these subjects. Chris read Experimental Psychology at Pembroke College, University of Oxford.

Chris can be found on Twitter @ChrisGrahamUK.

Jenny King Workshop facilitator

Chief Research Officer
Picker Institute Europe

Accomplished Chief Research Officer with a proven track record of developing strategies to advance person centred research. Responsible for a leading a team of experienced quantitative and qualitative researchers to advance thinking and policy around person centred care, with the end goal of improving patient and staff experience. Sixteen years' experience in health care research and quality improvement.