The meaning of support in persons living with chronic pain and its possible connection to person-centred care - Balancing between being the MVP and passing the ball Har passerat
Onsdag 15 maj 2024 13:30 - 13:42 G1
Moderator: Cornelia Van Diepen
Rapportör: Veronica Lilja
Spår: Informal Care and Support
Background: Around 20% of the population live with chronic pain. Chronic pain negatively affects both the individuals, their family, friends and society. Support from social networks and health care is important in pain management. Understanding the meaning of support could contribute to improved tailoring of supportive interventions for persons living with chronic pain. Objective: To elucidate the meaning of lived experiences of support in persons with chronic pain and its connection to person-centred care. Methods: Ten participants (seven women, two men and one non-binary person) living with chronic pain were recruited from patient organisations in Sweden. Interview data from participants were analysed using a phenomenological hermeneutics approach. Findings: The meaning of support in persons with chronic pain is balancing between being a capable person and accepting support, which could be interpreted as balancing between being the most valuable player (MVP) and passing the ball. Conclusion: Support when living with chronic pain means balancing between being capable (the MVP) and accepting support (passing the ball). The findings confirms that persons living with chronic pain want to take the lead in their lives and pain management. This aligns with person-centred care, in which the patient being an expert and active partner is central. The findings also indicate that accepting support can enhance one’s capability, which is pivotal in person-centred care.
Seminarietyp
Förinspelat + På plats
Föreläsningsformat
Orals
Konferens
GCPCC
Authors
Veronica Lilja, Sara Wallström, Markus Saarijärvi, Mari Lundberg, Vivi-Anne Segertoft, Inger Ekman
Föreläsare
Cornelia Van Diepen Moderator
Assistant Professor
Erasmus University Rotterdam
I am a social medical researcher at the Erasmus School of Healthcare Policy and Management (ESHPM) working together with the GU in the PCC@work project.
My research focuses on the impact of PCC on healthcare professionals and many other topics including women's health, internet research, and international collaboration on nutrition.
Veronica Lilja Rapportör
GPCC/Institutionen för vårdvetenskap och hälsa GU