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The role of informal carers in person centred care - insights from a study on welfare technology for older people and their informal carers. Passed

Wednesday May 15, 2024 13:54 - 14:06 G1

Moderator: Cornelia Van Diepen
Presenter: Maria Nilsson

Track: Informal Care and Support

The concept of person centred care is increasingly popular within healthcare in Sweden (1), and the ongoing reform “Good Quality, Local Healthcare “ (2) has been central in that development (3). Even though informal carers are included in the ongoing reform, position papers concerning person centred care primarily focus on partnership between the patient/service user and health and social care staff (4). In contrast, the recent Swedish National Carer Strategy (5) recognizes the need for recognition of informal carers, and the internationally adopted concept of integrated, people-centred care also highlights informal carers as partners alongside the patient and formal health and care professionals (6) to ensure sustainable long-term care systems within Europe (7, 8). This presentation explores this divergence of views regarding the role of informal carers within person centred care with reference to recent PhD thesis findings regarding society’s views of formal and informal care for older people within a Swedish context (9). The PhD studies illuminate the welfare technology solution discourse, that is, arguments in policy for the implementation and use of welfare technology to meet the challenges of an ageing population, finite financial resources and staff shortages, from the angle of international research, Swedish local policy, local politicians and older adults represented by pensioners’ organisations. The presentation will focus on the findings concerning informal carers, which revealed how they were positioned as part of the older person’s social sphere. This position ignores the help, support and/or care they provide to their older family member or friend on a regular basis. The pensioners’ organisations viewed the discourse with concern and positioned informal carers as crucial for the older person’s security and wellbeing. The presentation will conclude by inviting delegates to consider informal carers’ role within person centred health and care services operating in their respective countries. 

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Maria Nilsson, Stefan Andersson, Lennart Magnusson, Elizabeth Hanson

Lecturers

Profile image for Cornelia Van Diepen

Cornelia Van Diepen Moderator

Assistant Professor
Erasmus University Rotterdam

I am a social medical researcher at the Erasmus School of Healthcare Policy and Management (ESHPM) working together with the GU in the PCC@work project.
My research focuses on the impact of PCC on healthcare professionals and many other topics including women's health, internet research, and international collaboration on nutrition.

Profile image for Maria Nilsson

Maria Nilsson Presenter

Lektor
Nka/Linnaeus University

Jag är verksam som lektor i vårdvetenskap vid Linnéuniversitetet, samt som forskare och verksamhetssamordnare för Nationellt kompetenscentrum anhöriga, med bas i Växjö och Kalmar. Min forskning är inriktad mot äldre och deras anhöriga, och användningen av välfärdsteknik för dessa grupper.
Jag har en bakgrund som sjuksköterksa med specialistinriktning operation, samt även erfarenhet från äldreomsorg och primärvård.