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Feelings safe: Person-centred End-of-Life Care at Home Passed

Wednesday May 15, 2024 11:15 - 11:27 G4

Moderator: Cecilia Larsdotter
Presenter: Erna Haraldsdottir

Track: Life-limiting conditions

Background: Person-centred end-of-life care was set up by a Hospice in Scotland to enhance care in the community and support more people to be cared for and die at home. The underpinning theory for the model of care and the service was based on the Person-Centred Practice Framework developed by McCormack and McCance. Aim: To set up and evaluate a person-centred end-of-life care service at home through understanding both the key constructs that underpinned the service model as well as the outcomes for those who received the care. Method: A shared vision was developed for the service amongst stakeholders with jointly developing and agreeing on the necessary infrastructure that would underpin the service. Pluralist approach with the aim of understanding both what was happening and how it happened as the service was developed and delivered. To provide a deep and realistic illustration of the components and structure (mechanism) as well as outcome of the service through a detailed process information and understanding as to what happens and why. Findings: This study has brought to light the essential elements of the service and how and why these worked. Providing an in-depth understanding of a person-centred model of care that enables people with non-medical palliative care needs to be cared for and die at home. Thematic analysis highlighted three main constructs of the model; flexibility and responsiveness within the service, relationship-based care and enablement and empowerment. Conclusion: It was evident that the underpinning model of care provided a sense of safety at home which enabled people to stay and being cared for at home. This need to feel safe at home was fundamental to enable people to stay at home and die at home for those who participated in the study. 

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Erna Haraldsdottir, Anna Loyd

Lecturers

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Cecilia Larsdotter Moderator

Professor, Head of department of nursing science
Sophiahemmet högskola

R.N, PhD, Professor in health care science and Head of department of nursing science in Sophiahemmet University, Stockholm, Sweden.
Main research areas span from macro to micro level perspective: public health, quality and equity aspects of place for care and death of people of old age and life limiting and/or chronic illness and aspects of person-centred palliative care and nursing.

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Erna Haraldsdottir Presenter

Professor in Nursing
Queen Margaret University

Professor in Nursing, Deputy Head of Nursing and Director of the Centre for Person-centred Practice Research at Queen Margaret University. Since completing my nursing degree in Iceland, palliative care has been my field of practice and research. I have led on a number of person-centred practice development projects , educational teaching programmes and research projects in palliative care both nationally and internationally. I also serve on a number of development groups in relation to palliative care education and research and have published widely in palliative care research journals.