Joanne Greenhalgh

PhD, Professor

Affiliation(s)
Professor of Applied Social Research Methodology, School of Sociology and Social Policy, University of Leeds. President of International Society for Quality of Life Research (ISOQOL).

Title
Patient Reported Outcome Measures (PROMs) and patient centred care: It aint what you do, it’s the way that you do it

Abstract
In this talk I will examine the relationship between the feedback of Patient Reported Outcome Measures (PROMs) to clinicians and patients and patient centred care. I will briefly review what we understand by ‘patient centred care’, though this concept probably needs little introduction to the audience of this conference. I’ll then introduce PROMs, for those who may be unfamiliar with them. I will outline the ideas and assumptions about how the feedback of PROMs to clinicians and patients are intended to realise patient centred care. I’ll also consider some of counter ideas and concerns about these claims and briefly consider sociological literature on power in the clinician-patient relationship. I’ll examine the empirical evidence on whether and how PROMs feedback can support patient centred care and situate the findings in the critical data studies literature and the ethics and philosophy of measurement. The moral of this presentation is that it is not whether but how PROMs are implemented and used that shapes whether and how they support patient centred care. As the saying goes, it aint (just) what you do, its (also) the way that you do it.

Bradi B. Granger

Professor

Affiliation(s)
Professor, Duke University School of Nursing
Director, Duke Heart Nursing Research Program, Duke-Margolis Health Policy Center

Title
Advancing Person Centered Models of Care in a Value-Based System: What Will It Take?

Abstract
Person-centered models of care are defined broadly as the ways in which health services are delivered for individuals and populations experiencing various stages of health and illness. Ideally, care models focus on patients’ needs and incorporate the social, environmental, spiritual, and financial resources that a person brings into care planning. The goal being to ensure that people receive “the right care, at the right time, by the right team and in the right place.”

In US healthcare, a major challenge underpinning person-centered care delivery is the current payment system, which remains largely fee-for-service rather than value-based reimbursement. These payment models fail to reimburse health care systems or clinicians for longitudinal care, leading to uncoordinated, fragmented, and low-quality care.
This session presents a practical framework demonstrating evidence that health care organizations can accomplish person-centered care delivery across diverse settings. This framework was developed in collaboration with the American Heart Association and the Margolis Institute for Health Policy at Duke University.

We highlight barriers to implementing measurable, person-centered components of care into clinical practice and provide strategies to overcome those barriers, focusing on strategies that can be implemented across settings, especially low-resource and community-based practices representing broad social, economic,and geographic diversity.