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Understanding and improving person-centred care for children and young people Passed

Tuesday May 14, 2024 14:45 - 14:57 G2

Moderator: Ewa-Lena Bratt
Presenter: Amy Tallett

Track: Children and Youth

Background: Person-centred care is vital to delivering high quality care that focuses on the recipient’s needs and preferences. Person-centred care measurement is needed to understand improvement priorities. There are perceived challenges with understanding person-centred care in children and young people relating to ethics, variations in development and communication abilities, in addition to challenges regarding any symptoms and treatment.  Approach: When seeking feedback about children’s healthcare, it is important to consider the views of both the patient/child and their parents/carers. Evidence suggest views may differ, so it is important to gather both perspectives1. Surveys are widely used to gather feedback from patients. Those for children and young people should be developed in collaboration with them to ensure they are appropriate in terms of: Design – materials should be engaging. Wording and terminology – language should be comprehensible to a younger audience. Topic – we should ask about things that matter to them. Cognitive testing2 of surveys ensures people interpret questions as intended, and a pilot can trial the data collection methods. Examples: We have developed several survey programmes in England to gather feedback from children and their parents/carers on care experiences, including: The Under 16 Cancer Patient Experience Survey on behalf of NHS England. The Children and Young People’s Patient Experience Survey on behalf of the Care Quality Commission – focussing on hospital inpatient and day care. Insight from these surveys is used by care providers and commissioners to understand and improve person-centred care.   

Language

English

Seminar type

Pre-recorded + On-site

Lecture type

Orals

Conference

GCPCC

Authors

Amy Tallett

Lecturers

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Ewa-Lena Bratt Moderator

Professor
Sahlgrenska academy, University of Gothenburg

Ewa-Lena Bratt is a professor in nursing, specializing in transitions within healthcare. She is a registered nurse with specialized training in healthcare for children and adolescents, with over 30 years of experience in pediatric healthcare, particularly focusing on children and youth with heart defects.

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Amy Tallett Presenter

Head of Research
Picker Institute Europe

Amy is Head of Research at Picker, where she is accountable for the design, management, delivery and financial performance of a range of research and evaluation projects, to facilitate the delivery of high-quality health and social care.

Amy has a wealth of experience in designing methodologies for gathering patient feedback, including qualitative and quantitative research approaches that are accessible to the relevant audience. She has developed patient feedback surveys across a range of areas including children’s cancer care, pancreatic cancer, sickle cell disease, NHS 111, neonatal care and health visiting. She also provides expert consultancy in service user experiences of health and social care and in person-centred care.