Sessions

Authors: Maria Lindström

Authors: Brendan McCormack, Roianne West

The European Health Data Space (EHDS) introduces common requirements across the EU, but its implementation differs depending on national governance, existing infrastructure, legal frameworks, and how roles and responsibilities are organised. In this session, representatives from our Nordic neighbouring countries will provide an update on their current status, including implementation plans, priorities, and strategic choices.

How can person-centred care become a key strategy to strengthen healthcare system resilience in crises, disasters, and within the context of total defence? Drawing on lessons from the pandemic, current research, and experience in preparedness planning, we show how person-centred approaches can help safeguard continuity of care and patient participation even under extreme conditions. By integrating person-centred principles into preparedness plans, more robust systems can be built to withstand pressure. The lecture offers practical insights and tools to apply in your own organisation.

This presentation explores findings from a citizen survey conducted in Finland on awareness and attitudes toward the secondary use of health data. Results reveal strong support for research purposes, cautious views on commercial use, and a strong desire among citizens to retain control over their own health data. It will walk through key insights and discuss how these findings could guide practical implementation towards the upcoming EHDS regulation, inviting participants to reflect on their implications.

The session highlights national advances in precision prevention, showcasing how Estonia, Finland, Denmark, and Germany use genomics and health data to transform preventive care, including Estonia’s pioneering PRS-guided breast cancer screening.

Authors: Jenny Wising, Ewa Carlsson Lalloo, Eric Carlström, Charlotte Klinga, Emmelie Barenfeld

Europe is preparing for the European Health Data Space (EHDS), but what does it truly take to run a large secondary‑use health data project under a national access body that spans multiple data controllers and modalities? This presentation offers research-side insights from Finland in running a large Findata‑governed project combining EHR and CT imaging data for lung cancer risk assessment and diagnosis. The talk reflects on what we encountered across the life cycle of real-world health data: data discovery, contractual arrangements, data quality assessment, challenges of large data sets, data models and data usage in secure processing environment. The goal is to offer an experience-based view of how complex secondary-use health data projects operate, and how these observations can influence future health data and AI research, especially aligned with the EHDS principles.

War draws our attention to the front line, but the real test may be elsewhere.For every acute trauma patient, there are hundreds of people with chronic disease, the elderly, the vulnerable. When healthcare is scaled back to the basics, they will rely on primary care to survive.Should that care fail, the human cost can be extreme.How can a tried and tested system from northern Sweden serve rural Ukraine, and how can the Ukrainian experience help Sweden maintain access to the essentials, if the worst were to happen?

Who winns the Healthtech Award 2026? Welcome to the award ceremony where the winner will be presented! More information to follow

The VALO pilot is a multi‑country federated research study in non‑small cell lung cancer (NSCLC) across the Nordics using the OMOP Common Data Model. This session will share key outcomes from the study as well as lessons learned and recommendations from coordinating and conducting a study between University Hospitals in Norway, Finland, and Denmark. We discuss learnings from technical, informatics, governance, and organizational perspectives, and present recommendations for future collaborative health‑data research in the Nordics.The session will end with a discussion with the Swedish actors involved as observers and their reflections and key takeaways for moving Sweden forward in OMOP conversions of data and federated analytics.

In 2025, Primary Health Care Centre No. 4 (CCN4) in Kryvyi Rih, in partnership with ImagineCare, implemented a proof-of-concept (POC) Remote Patient Monitoring (RPM) project targeting patients with heart failure and hypertension—two of the most prevalent and high-risk cardiovascular conditions among its population. Using a digital health platform for real-time data collection, the initiative enabled continuous remote monitoring, early identification of health deterioration, and timely medical intervention. The project was designed to improve clinical outcomes, reduce emergency hospitalizations, and optimize healthcare delivery for patients with chronic conditions.A case presentation followed by a short panel on the learning opportunities through collaboration between Sweden and Ukraine

Authors: Sil Aarts, Mohammad Fayazi, Katya Sion