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Quality of Care in the End-of-Life: An Analysis of Studies Including Data from the Swedish Register of Palliative Care [PCC285]

Wednesday May 6, 2026 12:15 - 17:00 Poster Arena

Presenter: Joakim Öhlén

Track: Poster session, Equity, Justice & Diversity

Introduction: The Swedish Register of Palliative Care was established in 2005 as one of several initiatives to enhance palliative care quality in Sweden. To the best of the authors' knowledge, no comprehensive review of articles based on data from the Swedish Register of Palliative Care has been conducted to date. Aim: The aim of the study was to map and interpret how published original articles using data from the Swedish Register of Palliative Care contribute to advancing the understanding of palliative care quality in Sweden. Methods: The study was conducted using an exploratory design that involved content analysis of published original articles based on data from the Swedish Register of Palliative Care. Additionally, to assess the extent to which the included articles are cited in national policy documents on palliative care, relevant guidelines were examined. Results: The content analysis identified 7 distinct themes related to end-of-life quality. Overall, the studies suggested that end-of-life care is both suboptimal and inequitable, with disparities observed between diagnostic groups, across age cohorts and geographic location. Although few studies provided explicit reasoning about quality of care, several suggested future research themes revolved around exploration of general quality improvement and method development in palliative care. Conclusions: The body of research reinforces the perception that palliative care in Sweden remains a neglected area within the healthcare system. If the included studies accurately represent the current state of end-of-life care in Sweden, the need for development is both urgent and substantial.
Language

English

Conference

GCPCC

GCPCC Code

PCC285

Lecturers

Joakim Öhlén Presenter

Joakim Öhlén, Karin Svärd