Huvudbild för Vitalis 2026

Co-Designing Dialysis Patient Decision Aids: Exploration, Development, and Testing of a Digital Patient Decision Aid Across Nordic Countries [PCC100]

Onsdag 6 maj 2026 09:00 - 11:15 Poster Arena

Spår: Patient & Public Involvement, Poster session

Background: Choosing a dialysis modality is a decision influenced by health system issues and healthcare personnel’s and patients’ personal preferences, and it requires structured shared decision-making. Current practice lacks tools that integrate patient priorities with clinical evidence. Objective: To describe results from a multi-step process aimed at improving shared decision-making for dialysis modality choice in adults with chronic kidney disease. This process included (1) a scoping review to map evidence for person-centred interventions and home-based dialysis (Nygaard-Andersen, 2025), (2) a Scandinavian survey of adults with kidney disease and kidney professionals to capture priorities and perceived challenges, and (3) a design thinking approach including hybrid and online workshops with adults with kidney disease, kidney professionals, and patient associations to identify a decision aid of interest Results: The scoping review, which identified 13 interventions, showed that patient involvement in care and treatment, through shared decision-making, listening to narratives, and building partnerships was emphasised, while involvement in planning and documentation was less common (Nygaard-Andersen, 2025). Survey findings revealed differences between adults with kidney disease and kidney professionals regarding the perceived importance of economic and financial factors, technological complexity, and social relationships in dialysis modality choice. Variations were also observed across Scandinavian countries. The design thinking process identified numerous unmet needs and opportunities for innovative solutions in clinical practice, leading to the testing of a specific digital patient decision aid. Conclusion: Differences in priorities between adults with kidney disease and kidney professionals, as well as variations across health services and settings, highlighted the need for collaborative approaches. Bringing stakeholders together in innovative processes has driven efforts to improve the quality of care and foster solutions that support person-centred dialysis care. Nygaard-Andersen B, Torbjørnsen A, Hougaard PF, Leonardsen A-CL, Wolf A, Finderup J. Home-Based Dialysis and Person-Centered Care: A Scoping Review. Nephron. 2025:1-25.

Språk

English

Konferens

GCPCC

GCPCC Kod

PCC100