Header image for Vitalis 2026

Following A Standardized Pathway- Patient Perspectives on Colorectal Cancer Care: A Qualitative Study [PCC278]

Wednesday May 6, 2026 12:15 - 17:00 Poster Arena

Presenter: Åsa Petersson

Track: Poster session, Implementation & Knowledge Translation

Background: Patients with Colorectal cancer is following standardized care pathways, based on clinical guidelines. The focus is primarily on surgical procedures and outcomes. However, the clinical interventions represent a limited aspect of the patient's overall experience. Both patients and healthcare professionals report a high degree of fragmentation and an environment where cancer care is perceived as a form of production. This system leaves minimal room for healthcare professionals to interact with patients and the national ambition of achieving person-centred care becomes difficult to realize.  Aim: To describe patient experiences within standardized care pathways for colorectal cancer.  Method: A qualitative descriptive design was used. Convenience sampling included sixteen patients. Data were collected using semi-structured interviews and analysed using qualitative conventional content analysis.  Results: The analysis emerged three themes: Travelling along the colorectal cancer care pathway, bearing the mark of the disease, and telling one’s story. Patients’ narratives revealed a distinct asymmetry in the relationships in the care, some patients described experiences of inclusion and a sense of partnership, while others perceived the healthcare professionals as distant and disengaged. Feelings such as loneliness and the need for inclusion played a significant role to achieve participation. Integrate person-centred care within standardized frameworks requires healthcare professionals to move beyond procedural adherence and instead tailor their approach to meet each patient’s unique and evolving needs. In this context, continuous contact with a specialist or contact nurse emerged as a crucial factor in fostering a trusting relationship, as well as encouraging the patient's active participation in their care. Conclusion: There is a discrepancy between the intended goals of standardized care pathways and the actual experience. The findings highlight the essential role of specialist nurses in bridging the gap between clinical routines and patient expectations, thereby advancing the implementation of person-centred care within standardized systems.
Language

English

Conference

GCPCC

GCPCC Code

PCC278

Lecturers

Åsa Petersson Presenter

Åsa Petersson