Header image for Vitalis 2026

Painful Truths: Common Threads in a Tapestry of Chronic Pain on Identity [PCC131]

Wednesday May 6, 2026 09:00 - 11:15 Poster Arena

Track: Poster session, Patient & Public Involvement

This patient-oriented qualitative study explores the impact of chronic pain on identity through the arts-based research method of Digital Storytelling. Grounded in person-centred care principles, the projects engaged people with lived experience of chronic pain as both participants and Patient Research Partners (PRPs), who co-designed the research topic, refined methods, and contributed to the interpretation and sharing of findings. Using the 7-step Digital Storytelling methodology developed by the Story Center, USA, eight PRPs created first-person multimedia narratives that reflect their experience of living with chronic pain and identity. The study aimed to: (1) explore how digital storytelling reveals the complex relationship between chronic pain on identity, and (2) co-create research with PRPs to ensure it reflects their insights, values, and real-world impact. Analysis followed a three-stage approach. First, intertextual analysis examined how language, visuals, and tone conveyed meaning and emotion in each story. Second, a thematic analysis identified recurring patterns, concepts, and emotional threads across the stories. Third, each PRP used a structured framework to analyze their own stories, identifying key themes, emotions, and messages, which were then compared with researchers’ findings to integrate their unique, contextual, and relevant perspectives. The final overarching themes; Response-Ability, Integrating and Evolving Identities, Complexity of Pain, Pain Processing, were co-developed with PRPs to ensure authentic representation of their lived experiences. This collaborative approach highlighted how chronic pain reshapes self-perception, relationships, and meaning-making over time. Digital storytelling proved to be a powerful tool for capturing the nuanced, emotional dimensions of chronic pain on identity, offering rich insights that extend beyond traditional research methods. This study demonstrates how first-person narratives can deepen understanding, foster empathy, and support more person-centred approaches to care and research.
Language

English

Conference

GCPCC

GCPCC Code

PCC131