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Navigating the Fundamental, Relational, and Spatial-Temporal Dimensions of Being Relative in Institutional Long-Term Care [PCC054] Passed

Wednesday May 6, 2026 16:15 - 16:30 G4

Moderator: Eva Angelini
Presenter: Rouven Brenner

Track: Orals Informal Care & Support

Relatives of nursing home residents frequently inhabit a complex, multi-dimensional institutional context, navigating a delicate balance between personal connections and institutional demands. Existing research often adopts a role-based perspective, insufficient to capture the full scope of their experiences and the inherent ambiguities of "Being Relative." Based on 30 participatory observations, this qualitative study explores the "being relative" process from a person-centred perspective. We conducted a reflexive thematic analysis, revealing three core meta-themes that describe this navigation process. First, the Navigating Fundamental Dimensions of Being Relative meta-theme involves managing a Liminal Positioning in the Institutional World, experiencing Ambiguity in Institutional Situations, and dealing with Navigating Power Asymmetries in Institutional Life. Second, the Navigating Relational Dimensions of Being Relative meta-theme highlights the search for meaningful connections, including Seeking Resonance Amid Institutional Alienation, Co-Creating Relationships Through Recognition, and experiencing Moments of Genuine Encounter. Finally, the Navigating Spatial-Temporal Dimensions of Being Relative meta-theme focuses on how relatives navigate the physical and temporal constraints of the institution, including Navigating Institutional Space and Navigating Temporal Rhythms. Our findings present "Being Relative" not as a static role, but as a continuous, active, dynamic process of meaning-making and adaptation across these three fundamental dimensions. These insights are vital for developing truly person-centred care models that recognise and support the complex realities of relatives, moving beyond a one-dimensional view to a holistic understanding of their unique personhood.
Language

English

Conference

GCPCC

GCPCC Seminar type

Orals

GCPCC Code

PCC054

Lecturers

Profile image for Eva Angelini

Eva Angelini Moderator

Senior Lecturer
Göteborgs universitet

I am member of the conference organizing group.

I am a PhD-trained district nurse with research interests in pain management and implementation science. I currently lead the Living Well-Policy project focusing on person-centred care and integrated health and social care services.

https://www.gu.se/en/research/living-and-policy-lab-for-person-centred-care-and-long-term-care

Profile image for Rouven Brenner

Rouven Brenner Presenter

Research Associate & Advanced Practice Nurse
OST - Eastern Switzerland University of Applied Sciences

Rouven Brenner, Heidrun Gattinger, Hanna Mayer