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Profilbild för Systematic implementation of Patient and Public Involvement (PPI) at the University of Gothenburg’s Centre for Person-Centred Care (GPCC) [PCC202]

Systematic implementation of Patient and Public Involvement (PPI) at the University of Gothenburg’s Centre for Person-Centred Care (GPCC) [PCC202]

Tisdag 5 maj 2026 12:00 - 11:15 Poster Arena

Rapportör: Jana Bergholtz

Spår: Poster

Background International declarations have long called for strengthening democratic and ethical values in healthcare and research, while grassroot public movements have reinforced these. Consequently, research funders increased requirements for PPI, and in 2024 WHO adopted a resolution on social participation, creating even stronger incentives for systematic PPI. However, political shifts and resource constraints complicate implementation, underscoring the need to embed PPI in meaningful ways and assess how it brings value. PPI implementation at GPCC GPCC began implementing PPI shortly after its launch with a patient (HH) joining GPCC’s steering group. In 2016, a Person Council was established to facilitate further dialogue with patients and family carers. In 2021, a patient with research background (JB) was recruited, later added to the steering group, and tasked with strengthening PPI implementation. An internal survey identified challenges including compensation, recruitment and sustained engagement, unclear roles, and time constraints. In response, a PPI policy was co-developed with administrative staff, patients, and researchers. Preparatory work included contacting HR departments at 19 other Swedish state universities. None reported comparable routines; one was exploring the issue, and several expressed interest. The GPCC PPI policy specifies role descriptions, agreements, compensation aligned with national guidelines, insurance coverage, and clear ways to monitor progress. GPCC researchers can also apply for supplementary PPI funding. JB offers drop-in support for GU researchers and PPI contributors seeking advice. Discussion Inclusion in decision-making and institutional policies are first steps in resolving barriers. However, evidence on the effectiveness of PPI remains inconclusive due to inconsistent definitions and reporting, while evidence on cost-efficiency is sparse [1,2]. GPCC therefore combines implementation with research into both the potential and limitations of PPI, contributing to a more evidence-informed understanding of its role. References [1] Bergholtz J et al. BMJ Open. 2024;14(9):e083215. [2] Tscherning SC et al. Res Involv Engagem. 2025;11:78. 
Språk

English

Konferens

GCPCC

GCPCC Kod

PCC202

Föreläsare

Profilbild för Jana Bergholtz

Jana Bergholtz Rapportör

Patient Partner / Researcher
GPCC, University of Gothenburg

Jana Bergholtz, Jeanette Tenggren Durkan, Eva Thörnqvist Nilsen, Håkan Hedman, Axel Wolf