In 2022, a research study was published in Frontiers of Psychiatry by Dr. Katarina Grim and others, which examined collaboration processes between psychiatric/social psychiatric services and user organizations. The study was unique in its kind as it was planned, carried out and published by six researchers from different universities in Sweden together with seven representatives of the user umbrella organization NSPH. The study interviewed 28 people who work with user influence in various roles in Sweden. The study identified a number of gaps in the collaboration structures between user representatives and officials. It also highlighted successful strategies that can bridge these gaps and create more equal and efficient work processes. On the basis of these experiences, a working material has been developed in collaboration with Karlstad University and the user organization NSPH. We would like to present the experiences from the study together with the working material and a checklist that can be used when starting/evaluating collaboration processes with service user representatives. We used Miranda Frickers´framework for epistemic injustice to understand and develop the working material. Epistemic injustice is about different kinds of knowledge not being used in an equal way, depending on who is the sender. This can be expressed by certain knowledge not being considered as credible compared to others, it is not understood and it is not included in an equal way as other forms of knowledge. The working material presents three types of epistemic injustices, together with nine discussion questions to managers and officials who work in collaboration process with service user representatives. These topics and discussion questions highlight how you can create more epistemic justice and create more equal encounters in collaboration processes.
Adjunct Professor Nursing School of the University of Coimbra
Filipa Ventura is an Adjunct Professor at the Nursing School of the University of Coimbra, Portugal, and a researcher in the Health Sciences Research Unit: Nursing. Her work focuses on person-centred oncology care, health services innovation, implementation science, and the development and evaluation of complex health interventions.
She has been involved in national and international research projects aimed at improving care continuity, digital health support, and person-centred practices in outpatient oncology. Her current research interests include the use of participatory and implementation approaches to support meaningful, feasible, and sustainable improvements in healthcare services.
With a background in oncology nursing and health care sciences, Filipa combines clinical expertise, research experience, and academic teaching to contribute to evidence-informed nursing practice, professional development, and healthcare transformation. She is particularly committed to strengthening the role of nursing in developing responsive, safe, and person-centred care systems.
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