As rates of Parkinson’s disease continue to rise, so does interest in using predictive artificial intelligence (AI) to support (self-)care. But how do people with Parkinson’s themselves feel about these technologies?
This presentation explores the ethical dimensions of predictive AI in Parkinson’s management from the perspective of people living with the condition. Drawing primarily on a qualitative study with a patient panel in a European project developing predictive AI tools, we examine how participants view AI-driven risk prediction, prognosis, and medication response tools.
The session will discuss practical implications for responsible implementation, emphasizing the need to actively involve people with Parkinson’s in development and decision-making, ensure appropriate communication of sensitive predictions, and build safeguards to prevent harm and widening inequalities.
Language
English
Topic
Future Health and Care
Seminar type
Live + On site
Lecture type
Presentation
Objective of lecture
Orientation
Level of knowledge
Introductory
Target audience
Technicians/IT/Developers Researchers Students Care professionals Healthcare professionals Patient/user organizations
Jamie Luckhaus is a third‑year PhD candidate in the PATH research group at Uppsala University with an interdisciplinary background in health and social sciences. Jamie’s research focuses on how digital health technologies can support self‑care and self‑management in Parkinson’s disease, with particular emphasis on self‑tracking, artificial intelligence, and patient‑centered ethical perspectives.
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