Huvudbild för Vitalis 2026

Person-Centred Care and Incontinence: An Analysis of Lived Experiences Using McCormack´s Four Dimensions of Personhood [PCC262]

Onsdag 6 maj 2026 12:15 - 17:00 Poster Arena

Rapportör: Lina Wiemer

Spår: Poster session, Illness Communication

Introduction: Incontinence is associated with shame, stigmatisation and daily burdens and reduces quality of life. Experiences go beyond physical symptoms and concern dignity, social participation and self-efficacy. The aim was to synthesise experiences of people with incontinence and identify approaches for person-centred care. Methodology: The methodology is based on a scoping review. A systematic literature search was conducted in PubMed, Cinhal and Cochrane Library between 2015 and 2025, including German and English-language studies on experiences of people with urinary and faecal incontinence. The results were categorised into the four core aspects of personhood according to McCormack (2004). Results: The analysis of ten studies shows that incontinence characterises all four dimensions.  Being in relation: Empathic support from carers was valued, while lack of inclusion and not being taken seriously led to feelings of degradation and loneliness. Being in a social world: Shaped by shame and withdrawal, public activities were avoided for fear of stigmatisation. Even though there was desire for normality, intimacy and belonging. Social support from carers was relieving and helped to break taboos. Being in place: Searching for toilets and adapting the environment shaped experiences. Care homes with "pad-first" strategies were described as degrading, while familiar care relationships provided security.  Being with self: Incontinence affected identity and self-image through loss of control, ageing or loss of masculinity. Guidance in pelvic floor training support body awareness, self-efficacy and acceptance. Discussion: Incontinence deeply affects personhood. Caring support is central to strengthening dignity, participation and self-efficacy. Where carers build relationships, enable participation and address needs, person-centredness becomes visible. However, this practice is not consistently implemented. Person-centred care requires taking the voices of those affected seriously and viewing incontinence care not as excretion management but as part of a holistic personhood, followed by the selection of appropriate measures to strengthen such care.
Språk

English

Konferens

GCPCC

GCPCC Kod

PCC262

Föreläsare

Lina Wiemer Rapportör

Lina Wiemer, Daniela Hayder-Beichel