In this panel, we bring together researchers involved in measuring person-centred care from different perspectives and context. The panel will open with brief introductions, followed by a moderated discussion on the opportunities, challenges, and methodological considerations related to measuring person-centred care. The panel will be moderated by Lena Rosenlund, from The University of Gothenburg Centre for Person-centred Care, GPCC, and the Regional Cancer Centre in Stockholm, she will guide the discussion to highlight key learnings, gaps, and future directions. Invited panel members: Maria Santana, Dr. Santana is a Patient-Reported Outcome Measures methodologist working to implement previously developed high quality person-centred care quality indicators to measure person-centred care across the continuum of care. She is also studying the role of Patient-Reported Outcome Measures in the routine clinical care. Helena Fridberg, Dr Fridberg is a postdoctoral fellow at the Department of Community Medicine and Rehabilitation at Umeå university, Sweden. She also works at the GPCC to evaluate a patient-reported measure for person-centred care. Eskil Degsell, is a caregiver and vice chair of the Swedish Brain Tumour Association. He is a member of The GPCC Person Council and involved in several projects and research. He is also affiliated to the Karolinska Institute and Hospital in Stockholm, Sweden. Additional panelists will be added.
RN, PhD, Postdoc. Gothenburg Centre for Person-Centred Care, Institute of Health and Care Sciences, Gothenburg university and Regional Cancer Centre Stockholm, Sweden
I hold dual affiliations, as a postdoctoral researcher at The Gothenburg Centre for Person-Centred care, Institute of Health and Care sciences at Gothenburg university, and working at the Regional Cancer Centre in Stockholm, Sweden. My key interest in research is person-centred and neuro-oncology care, psychometrics and metrology in the health sciences, patient and caregiver experiences and involvement and the use of patient-reported measures in clinical practice and research. I am also involved in the European Association of Neuro-Oncology (EANO), the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life group and the Swedish National Quality registry for CNS tumours.
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