Programpunkter

How do you go from being a novice to becoming skilled in biomedical and health informatics, if you’re not on the list for comprehensive and formal education within the field? We studied this and will present our insights.

Patient accessible electronic health records (PAEHRs) have been proposed as a means to improve patient safety and documentation quality, as patients become an additional source to detect mistakes in the records. In pediatric care, healthcare professionals (HCP) have noted a benefit of parent proxy users correcting errors in their child’s records. However, the potential of adolescents has so far been overlooked, despite reports of reading records to ensure accuracy. The present study examines errors and omissions identified by adolescents, and whether patients reported following up with HCPs. Survey data was collected during three weeks in January and February 2022 via the Swedish national PAEHR. Of 218 adolescent respondents, 60 reported having found an error (27.5%) and 44 (20.2%) had found missing information. Most adolescents did not take any action upon identifying an error or an omission (64.0%). Omissions were more often perceived as serious than errors. These findings call for development of policy and PAEHR design that facilitates reports of errors and omissions for adolescents, which could both improve trust and support the individual’s transition into an involved and engaged adult patient.

Monday 22 May: 1pm-3pmTuesday 23 May: 1pm-2pm

More than 40% of the adult population suffers from functional gastrointestinal disorders, now considered disorders of the “gut-brain axis” (GBA) interactions, a very complex bidirectional neural, endocrine, immune, and humoral communication system modulated by the microbiota. To help discover, understand, and manage GBA disorders, the OnePlanet research center is developing digital twins focused on the GBA, combining novel sensors with artificial intelligence algorithms providing descriptive, diagnostic, predictive or prescriptive feed-back.

Short introduction to the National Research Data Infrastructure for Personal Health Data (NFDI4Health) and proposed solutions towards findability and interoperability of clinical and epidemiological studies. Two services will be presented: the German Central Health Study Hub to support the findability of studies and the Metadata Annotation Workbench to support enrichment of data collection instruments with standardized vocabularies on the study item level.

A demonstration of an open source software prototype for improving infection control in hospitals called Smart Infection Control System (SmICS). It provides services for tracing contacts between patients, showing in-depth details for microbiological findings, patients movements and wards and offers epidemiological curves without having a vendor-dependent data storage within the application, because it is fully based upon an open interoperability standard (openEHR).

The MIE conference has always been a hub for innovation and cutting-edge technology. This year was no exception several demonstrators showcase their unique solutions to healthcare problems. Use the opportunity to take a closer look at some of the most striking demonstrators present at the conference, highlighting their diversity and the potential impact they could have on various healthcare-related challenges

Adverse Drug Reactions (ADRs) cause a significant impact on patients’ Quality of Life (QoL) and vastly increase costs, especially regarding chronic diseases. To this end, we propose a platform that aims at supporting the management of patients with Chronic Lymphocytic Leukemia (CLL), via an eHealth platform facilitating inter-physician interaction and the provision of treatment consultation by a specialized ADR management team comprised of CLL experts.

Process mining is a relatively new method that connects data science and process modelling. In the past years a series of applications with health care production data have been presented in process discovery, conformance check and system enhancement. In this paper we apply process mining on clinical oncological data with the purpose of studying survival outcomes and chemotherapy treatment decision in a real-world cohort of small cell lung cancer patients treated at Karolinska University Hospital (Stockholm, Sweden). The results highlighted the potential role of process mining in oncology to study prognosis and survival outcomes with longitudinal models directly extracted from clinical data derived from healthcare.